Low grade diagnosis, waiting on grading - not coping well

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Hi All, my second post

had my meeting with consultant and nurse yesterday, who explained the following:-

my womb was full of polyps to the point where they were just falling off
One of the polyps has tested positive for low-grade/grade 1 cancer;
I’m now awaiting MRI on 4th December with a provisional hysterectomy booked in on 18th December;
the cervical biopsy showed no cancer but they only tested one area so want to use the MRI to see if it’s spread;
If it’s grade 1a or 1b it’ll be the hysterectomy, if it’s grade 2, then it may be radiology rather than a hysterectomy - they may not be able to perform the hysterectomy if it’s spread to my lymph nodes

I was under the impression that I would be going yesterday to discuss the hysterectomy and I’m quite shocked that this may not be the case

Both the consultant and nurse have told me that they’re ’very confident’ that I’ll get thru this, but I don’t feel that I can believe them - has anyone else felt like this?

also has anyone else been in this situation?

Waidh 6 hours ago

Not been in the same situation, but it seems they have given you a lot of information, before they know the full picture, my hospital was the opposite, they wouldn’t given me details until they knew everything.

my MRI showed a prominent but not enlarged lymph node, so I also had PET scan before my op, this showed few cells on ovary but nothing in lymph node. They used this (I didn’t know at time) to sort their plan of attack, which was hysterectomy but not touching any of the lymph nodes during op, and blast that dodgy lymph node afterwards with radio.

I know others here have had lymph nodes taken as part of op.

As I said I hadn’t appreciated pre op, the decision they had taken as an MDT to treat my own circumstances, this was explained post op when I saw oncologist, but it made perfect sense. In your case they are still waiting on tests ,,.MRI, and I think they are just thinking about best course of treatment for you individually, but won’t know until MRI is done.

i think it’s good news you have provisional date for op.

this stage of not knowing what’s what is really hard, but hopefully you will have MRI and results really soon, so you have actual details re planned treatment.

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Low grade diagnosis, waiting on grading - not coping well