Hello,
I had a robotic hysterectomy (ovaries, tubes, cervix, uterus, washings and sentinel node biopsy) on 7/7 and I’m doing well. Walking every day, enjoying my time outside! And starting to do a bit of work every day (and hour or two max).
My histology results were discussed at mdt on Friday and I’m seeing my consultant’s team on Thursday at their normal clinic.
aside from getting the results and next steps (if needed), what else should I expect from that appointment? I.e. will they want to see how the ounces are healing? Do they check the cuff (sorry, got to ask if there’s any kind of internal exam as that’s never been mentioned and Dr. google freaks me out).
Since my diagnosis (June) I came off HRT and am now experiencing the full whammy of menopause symptoms. How have you all dealt with those and where did you go for support? The CNS. The gynae team? Should that be part of the next discussion or am I just getting too far ahead of myself?
I did try searching the forums here, but haven’t yet mastered the search function. It seems to bring up really random stuff.
thank you!
Hi DHT240
Am glad that your recovery is going ok.
I was given my post op results by telephone and then called in for an appointment to see the chemo consultant around a week later. I must have been around 4-5 weeks post op.
During that appointment I only had my tummy wounds checked for healing. There was no internal. I had bloods taken and the rest was talking about the chemo.
I think what will happen at the appointment will depend on your post op results. The stage and grade is important but also the sentinel node check. If the node is clear and you have a low grade 1 cancer that is at its earliest stage 1a- sometimes the surgery can be enough. There is likely to be a general discussion about how your recovery is going.
If you need further treatment the appointment would likely to be to discuss which treatment(s) you need, what will happen and discussion about potential side effects. If further treatment is needed I would expect them to check your wounds for healing but not likely to have an internal until treatment has finished. The only exception I can think of is if you need brachytherapy however I would expect the internal check to be done prior to the brachytherapy rather than at the results appointment.
If you go on to have regular check ups then these would usually include an internal each time to check for signs of recurrence.
Hope this helps- good luck for your appointment.
Jane
Hello all, just a quick update about my appointment this morning.
Histology results confirmed as a grade 2/3 stage 1b endometrial cancer. It was a provisional grade 1 stage 3 - so the confirmation of stage 1b is amazing!!! I will have to have external beam radiotherapy to prevent recurrence - but with a massive dose of luck, that will be it. 
They’re very happy with my wounds and with the walking I’ve been doing. Very happy! But warned not to do too much other stuff (exercising, housework, gardening).
And I need more sleep.
Need to get my GP to refer me to a specialist post cancer menopause expert as the sleep disruption is kicking my butt .
And I just had a text to say I have an appointment with the oncology consultant on the 26/8!
Today has been a good day. A very good day. I know the journey isn’t over yet, but, I’m feeling positive (if a little tired).
Am glad it went ok today. I was stage 1b grade 3.
Good luck for your appointment on the 26/8
