Hi all,
I’m sorry if I’m repeating myself, but I’m curious to see if anyone has had the same experience as me with knee and ankle joints.
For a couple of months before my diagnosis and hysterectomy, I had painful (felt like inflammation) knee joints after lying down or sitting for a while. It was pretty bad and I’d have to stand still for several seconds until it calmed down and I could walk away. With all the drama of a sudden operation I forgot about it until the day after my op I suddenly noticed it had gone away. I was very happy and mentioned it to my surgeon who said it was nothing to do with the op.
i haven’t been able to get any health professional to take me seriously about it, which is annoying as I’ve just finished 5 1/2 weeks of radiation, and the pain has come back, this time it’s mainly in my ankles.
I can’t have another hysterectomy so was wondering if anyone had heard of anything like this, and have any recommendations, because it’s pretty limiting.
I’ve just started going back to work and hobbling like an old lady is embarrassing.
Hi Captainloo
I did have joint/bone pain during and after chemo. I did have some stiffness around my hips and lower back after radiotherapy. I did develop neuropathy symptoms after chemo. However I didn't have any of these before treatment.
With the radiotherapy stiffness I found it did improve a couple of months after radiotherapy ended.
We are not medically trained on here but a couple of things come to mind. As you had it before the hysterectomy and then it resolved for a while- is there a hormonal/menopausal element.
Also is it worth asking whether a referral to a rheumatologist could be considered.
I wonder also whether it is worth posting directly to the nurses who may be able to make other suggestions.
(+) Ask a Nurse | Get answers about cancer | Macmillan Online Community
I hope you can get some answers soon.
Jane
