STARTING TO SINK IN

It was my CNS I was referring to actually. There are 3 of them but no one got back to me and when I call there is always the answerphone on. I have been advised by a Mc Millan Nurse to liaise with the consultant's secretary, which  might help.

In any event, I had the MRI yesterday without the dye because they said I just had too many serious allergies and they didn't want to take the chance of a bad reaction. I have lupus, asthma and had a cardiac arrest after a general anaesthetic years ago that was also an allergic issue. The scan went OK and I will get results in the next couple of weeks. Testing times! Thanks for your input!

Thanks so much for your kind words. It really helps. The waiting can be the worst thing can't it? Your wisdom is appreciated and I try to take each day as it comes and not overthink everything, but it is hard. I have found a wonderful support at the Eve Appeal. A lovely lady who called me at home and answered tons of questions about treatment etc.....and we really clicked! You need a village around you....

Thank you so much. The scan went well and I think they meet on Fridays and I will hear something next week - hopefully but we'll see. Meanwhile, I am trying not to think too much about it all, catch up with chores and keep busy! You are right about not jumping the gun but sometimes it pays to prepare before meetings with the consultant, because last time they kind of railroaded me a bit..,..!

Hi hope you are ok … just saw your post and I could have wrote it myself as exactly how I feel.

I’m at the same part of this journey as you I think.

Got my results and MRI scan Tuesday just gone.

Packed my hospital bag yesterday and friends called in to see me so it was all go …woke up today and just feel a bit ‘Bleugh’ for the want of a better word.

Nothing has happened and nothing new to worry about since yesterday… prob the same as you and just hit me today. 
I think once we know what the results of the mri scan etc are and the plan to get us sorted is discussed we maybe will feel better as now it’s that limbo stage.

sending hugs x

Wow, packed your bag already? Well done! Have you seen the thread re suggestions of things to pack, just in case there’s anything you haven’t thought of?

Went on a spending spree to cheer myself up by buying new pjs and slippers ( catalog so worry about paying for it later lol ) 

Think knowing it’s sorted felt like I was in control a bit as at the min I feel like on a rollercoaster and can’t get off it. 

Plus if it was left to my better half I’d end up with Christmas pyjamas, the dogs towel, my hair dye nighty and a few packets of crisps he tries tho lol 

I had a look at that page about what to pack .. really helpful suggesting your own pillow so I’m definitely doing that as will make me feel better  x

Snacks are important too! 

Hi, what stage exactly are you in? I had my MRI results and they were encouraging. No myometrial invasion etc...so they are treating me with progesterone for now, until I've lost some weight! Hope you are doing well...

Stage 1 was mentioned.. that much to take in my head was 100 mph.

Id not been ill or anything and had a teeny show about the size of my fingernail. Friends nagged me to get checked as been through the menopause. 
Had a biopsy done then said results 2-4 weeks by letter.

Couple of days later got a phone call saying I had a hospital appointment the next day and to bring someone. Obviously knew it must be bad news.. 

Told me I had cancer and would need a hysterectomy.. did a mri to see if just on the wall and not gone through the layers or something ..

Waiting to hear the results and what they will be doing to sort it. At that limbo stage now .. Nurse just rang to see how I’m feeling etc and I might hear something next week or the one after what’s happening. 
So hopefully I’ll get good news as it’s that worrying part not knowing ..

Bits if info keeps coming back as such a shock after the C word was said.

Said looks like it’s the ‘best’ one to have and early .. head a bit battered today as yesterday I was in organising mode but today doing nothing much so over thinking

Hugs  x

I feel for you. I had my MRI results over the phone and they were as good as could be expected, so hopefully yours at the early stage will be too. I'm not having a hysterectomy (at least not yet) as I want to lose some weight and get fitter for the surgery as I have underlying conditions to deal with too. Having the hormone treatment but only for a few months and then we'll see. It's such an individual choice but most will have surgery I think. It's such  a shock diagnosis but keeping busy helps. So many supportive people on here to help you though. Take each day as it comes and good wishes.