Find it hard to understand……

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Hi everyone 

I just wanted to say that after being diagnosed with womb cancer and having such a ‘deadly’ disease, I find it hard to understand that I have never felt unwell!

The only times I have felt unwell or ‘under the weather’, is after my hysterectomy and after my session of chemotherapy as I have only had one so far.

I don’t want to feel poorly, but having or hopefully had a serious disease you would think it would make you feel unwell, I’ve felt worse with a common cold!

I know it’s maybe a silly thing to post, but I just wanted to share my thoughts.

Wishing everyone good luck and best wishes with treatment, operations and recovering.

Ange

  • Hi Ange

    Not a silly thing to post at all. It will help others who may be under the impression that having cancer makes you feel really unwell so if you feel ok, you are ok. That is not necessarily the case. 

    Other than an episode of bleeding before diagnosis, I felt my normal self. A bit tired and run down, but I had covid just before being diagnosed. Also had a full time busy job. 

    I felt rough after my biopsy for a couple of days. I had a couple of off days after surgery where I felt wiped out but I wouldn't say I felt ill or in pain. I think a lot was the emotional part and the anaesthetic. 

    In fact looking back it was the treatments that made me feel really ill and caused me to be ill. Both the chemo and radiotherapy. This is not the case for everyone and I wouldn't want to alarm anyone currently needing these treatments- but it was them, not the cancer that caused me to feel unwell. 

    I hope you are recovering ok from your first chemo and that the rest of your treatment goes well.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • FormerMember
    FormerMember

    Ange,

    I know exactly what you mean. Hope your chemo is going well, sounds like it is. I have had Ifew side effects and am more or less living my normal life. Good luck with it all x

  • Hi Ange

    I completely understand as I'm not normally a sicky person, my immunity must be great as my hubby had a bad cold and I never even got sniffles. The only time I felt poorly and vulnerable is after hysterectomy and with the chemo as I kept having allergic reactions and it was not good! But yes as you say for such a deadly horrible disease yet I didn't have any illness or felt under the weather. So I share your sentiments in every way.  

    Madesp 
  • FormerMember
    FormerMember

    Hi  

    I understand you completely but it has not been the case for me. I had post menopausal bleeding but also awful pain before the hysterectomy. The rest of the story is in my profile if you would like to read.

    I have stage 4 cancer but it is currently stable. My groin area is permanently affected by scar tissue inside and sitting is uncomfortable. I am just grateful to be able to walk as pre treatment, it was very difficult. 

    I know that my experience of womb cancer is in the minority in the group but I just thought I'd show the other side of the coin. Best wishes for your treatment and long may you stay well.

    A x

  • Hi Sistermoon, I'm assuming and read many times  that mostly the ladies who are/were early stage 1a or so had little or no symptoms apart from the PMB which starts the ball rolling. I always remember MRSBJH telling me that if YOU feel well then You are well and I hang onto this quote

    I hope you continue to be well , take good care xxxx

    Madesp 
  • Hi sistermoon

    I’m sorry that you were unwell before your operation, and I realise that everyone doesn’t have the same experience, even though they have a similar diagnosis.

    I wish you the very best.

    Ange

  • Hello  

    I was very tired pre diagnosis. I put that down to my Long Covid *I am under the Long Covid Team). I definitely was more tired than usual. I also put this down to three episodes of blood in my urine - lots of it - in the previous months. I was reassured that my bladder was normal after a referral for cystoscopy and a CT scan on May.

    It turned out last Summer that the blood loss was from my womb when I had blood loss again.

    Apart from feeling exhausted all the time, I didn't feel ill as such. So I resonate with what you are saying. Although I do feel unwell during my pelvic radiotherapy at the moment. 

    Wishing you all the best xx

  • FormerMember
    FormerMember in reply to Ange19

    Hi Ange,

    think we are all the same really, all going through same experience, having good and bad times whether emotionally or physically. I'd say just enjoy feeling well- i  really understand - once I had op I felt better than I'd felt in months and thought somehow my diagnosis was wrong! We all are scared what the future holds whatever the grade, stage or prognosis I think and it would be great to have a crystal ball. I think just  enjoy feeling well and long may it continue x I'm not sure I've come across exactly how I wanted to here but I know what I meant JoyJoyHeart eyes