Hi, I will have my full hysterectomy with pelvic lymph nodes removal next week. I’m just wondering if anyone has M.E or Fibromyalgia, did these affect your recovery or Pain ? Did the recovery take longer, was the chronic pain worse ? Or was it more manageable because your use to pain anyway ? How did you cope with the pain, did your normal pain meds help or did you have to take more ? What did you find helped you cope ? If you had a M.E flare (or what I call my sleep episode) what did you do to try and keep mobile ? Any help and advice would be great please, as I don’t want to go into a full M.E or Fibromyalgia Flare and find it harder to overcome it and heal from hysterectomy and cancer. Thanks in advance
Hi Debs
I hope that your surgery goes well next week. I have not got ME or Fibromyalgia but can understand your worries about how it might affect your recovery.
Have you spoken to your CNS/doctor to ask whether they feel it could affect your symptoms and what you can do to help if they do?
You could use the Ask the Nurse section on here to get some general advice. They would normally respond within a couple of days.
(+) Ask a Nurse | Get answers about cancer | Macmillan Online Community
Alternatively if you wanted a quicker way then you could call the Support Line (number below) and speak to one of the nurses that way.
If you want to see posts from other people that have Fibromyalgia/ME then you there is a search button next to the home button. If you type in fibromyalgia or ME then it will bring up previous posts that may be helpful to look at.
There are also a couple of other links that I will post that may be of help.
Living with M.E. | Action for ME
FMA UK - Helplines (fibromyalgia-associationuk.org)
Hope this helps a bit. If there is anything else you need please do ask.
Jane
