Hi.
Background first. Hubby being treated for prostate cancer which was diagnosed earlier this year so 100% been focused on him. I am a member of the PC forum for him obvs.
But somethings happened and I have just realised that I probably have a problem and have been ignoring it for nearly 2 years.
I am really just looking for a little pat on the head and a push in the right direction!.
I thought it was all normal in the run up to menopause, but now I know its really not.
I have essentially bled for most of the last 18 months. Spotting every day. Bleeding heavy at will. Two UTis. Flooding to the point I put myself on iron tablets. Back pain. Shoulder pain. A heavy congestion in my womb. Pain in my side. Bleeding when bearing down. Sever constipation now for 2 months. Feeling like my bladder never empties. Pressure when I pee. Bleeding after sex. Oddly I feel like an ache, like a broken bone ache in my lower abdo.
I am 49. Two years ago my periods were almost nothing and that was just accepted as the normal run down. Then this. Its not good is it.
So I checked with my gp when I last had a smear. 2018. Booked in for next appointment at end of month. Then I got an appointment with the womans health nurse but that's two weeks away.
I don't take any meds for menopause i was just riding the waves, nothing, haven't had the pill for ever ( 25 years plus).
I think I need to see GP ASAP don't I?! I can't tell anyone because honestly if it's nothing then I am just adding more drama to our family needlessly. But hubby and I always seem to get sick at the same time it's a odd symbiotic relationship!
It never crossed my mind at all, untill I realised I can't even have a BM now. It's 10 days atm and counting and the only way I can clear it is to max out on laxatives. Though I have obvs done all the right things, prune juice, califig, fiber, fluid etc.
Such fun!
Hello Quitit23
Welcome to the Womb cancer forum. I am sorry to hear that your husband has been diagnosed and treated with prostate cancer over the last year. It is understandable that you have felt you needed to focus on him and that you have not yet dealt with your own health.
Please contact your GP tomorrow and make an appointment for yourself. I can understand that you feel you don't want to add any drama to your family at the moment but if you do not get checked out and it turns out that you have something seriously wrong then they are going to know anyway.
Your symptoms can have different causes and may not be cancer but whatever is causing the symptoms needs to be investigated. If you are able to, maybe make a list of the symptoms or even print out this and show your doctor. I would hope that the doctor would put you on the 2 week urgent pathway. My only symptom at diagnosis was a bleed and that was enough to get an urgent referral.
To give you an idea my first investigations were blood tests, then ultrasound.
When my ultrasound showed a problem then I had a biopsy and CT scan.
Please do not leave it 2 weeks until you see the nurse- you know that these symptoms need looking into. By the time you would have seen the nurse you should have a much better idea of what the problem is.
I know that it can be scary but it is far better to know what you are dealing with. It may not be cancer, it maybe something else but it needs checking.
Please call your GP in the am.
In the meantime if you feel you want to talk it through with someone first then I can recommend the Support Line. The number is below.
Jane
Morning Jane
Thanks for your response, much appreciated :) I have slept on it and decided the following:-
a) it is probably just fibroids and in that case no rush
b) if it is something sinister two weeks wont make any difference its been going on for 2 years, and apparently it slow growing (hubby was told his PC was at least 10 years old!)
c) i cant face rushing off to the GP today and for them to look at me like some neurotic woman (not a frequent flyer but with hubbys situation they sure will put 1 and 1 together, but cant be doing with it!)
d) bleeding and sore atm and really cant face being prodded
e) honestly i am enjoying the weight loss, and if its just fibroids that will help surely
I dont know how, but i have just allowed this to go on for so long accepting it as normal, i cant now panic, because it never crossed my mind until 4 days ago, and at the end of the day if it is, then how bad is it going to be [shrugs] it will be a little puff of a growth all fixed with a neat hysterectomy which will stop all this once and for all...winner winner!!
Hi Quitit23, if your GP surgery does eConsult, then you can do it calmly and quietly online and then let them decide how soon you need to be seen. That’s how I told my GP about my symptoms and the surgery responded by phoning the next day and offering me a face to face appointment the day after that. I would encourage you to try that and then seeing what the response is. Leaving it again may mean it becoming harder for you to get an appointment as it will then be school holidays. I’d suggest you at least make this approach and get into the system - you will still be in control as to appointments etc, as you will still have a choice as to whether to attend, but at least you will be turning and facing this head on which i found to be the most helpful way to deal. For me when I saw the GP the first step was an ultrasound which took place a week or so later. Two weeks could make a difference and I’d encourage you not to leave it any longer.
Good Morning Quitit,
Am glad that you have slept on it and given it some thought. It is your choice.
But please keep that appointment with the nurse. I am concerned about you and the symptoms you are having. We are not medically trained on here and can only offer support from our own experiences. However to me some of your symptoms are like red flags to me- that you need them to be checked, whatever the cause is.
I can understand what you are saying and I know that it can be scary but my first visit was blood tests and medical history. There was no poking or prodding. I was then referred for an ultrasound that was painless. It was only when I got to the biopsy stage that I had any sort of abdominal and internal examination. You could even consider doing one of those online consultations and that would help you to be able to explain the symptoms and to get into the system without worrying your family etc.
My first symptom was a bleed, I had no other symptoms. I had surgery 4 weeks later. The post op pathology showed it was an aggressive grade 3 type 2 endometrial cancer and in those weeks I already had LVSI. That means it was trying to spread. When I had the bleed and went to hospital I hoped it was probably fibroids. When I had my biopsy it confirmed cancer. I was told an operation would fix it and it was probably contained and slow growing. I did not know how bad it was until after I had my hysterectomy. I had to have 4 cycles of chemotherapy followed by 5 weeks of radiotherapy. Both have left me with some long term affects. But I consider myself lucky that I went and got checked that first day. If I had left it, it could have been a very different outcome. I still need to be seen every 12 weeks. If you want to, click on my name and see my bio and timescales.
It is your choice and you are in control of this but it can be difficult to get doctors appointments at the moment and your health is as important as your husbands. If you did the online consultation and the doctor says it can wait a couple of weeks then at least you have made the first step. It may be that the doctor could refer you for an ultrasound straight away and then that could be out of the way before you see the nurse. That would give you some time to plan perhaps.
Jane
Just a little PS and recap: you posted yesterday wanting a pat on the head and a push in the right direction. I forgot the pat on the head so here it is: it’s good to see you here, you matter and your needs matter. And now the little push: you were sufficiently concerned about yourself yesterday to join and also post on this forum, so may I suggest that you now look after yourself and take the next step to getting this sorted, without procrastinating any further. Bless you, you can do this.
Hi Quitit23, firstly welcome to this forum. Sorry to hear about all your health issues and those of your husband. I agree with jane2511 and Marmitefan59 that you need to see either a nurse or GP to check out your symptoms, especially as they have been ongoing for some time. Whatever the cause, they will be able to arrange any necessary checks quite quickly. In June 2022 I had a slight pinky/brown discharge followed by some bright red spotting. I had no other symptoms and felt well. I saw the Advanced Nurse Practitioner at my GP's surgery and she arranged to fast track a referral to a gynaecologist. 2 weeks later I had a transvaginal ultrasound and biopsies taken. I got quite anxious thinking about the diagnostic tests but they were not as difficult as I imagined; maybe a little undignified but not that uncomfortable. Mine was cancer and I had a hysterectomy. It's understandable that you want to focus on your husband but your health and wellbeing are also important.
Hi Quitit
I had bleeding problems for four years had everything checked with an ultrasound 4 years ago and all ok. The bleeding carried on intermittently and I just got on with life thinking I have had a check up everything is ok. I suffer with depression and anxiety and kept pushing away the symptoms because I just couldn’t face the thought of seeing drs having tests etc. in April I had another of these bleeds which was very heavy and painful and the long and short if it was I expelled a piece of dead endometrial tissue and 3 fibroids. I ended up in an and e twice and the whole experience was horrific. I have since been diagnosed and have had a hysterectomy follow up treatment yet to be decided.
I was embarrassed that I had left things so long but a lovely consultation in an and e said let’s now concentrate on the future not the past. All the drs and nurses along the way have been amazing and empathetic even though I had been expecting ‘why have you left it so long’.
I had 11 fibroids so having them removed helped with weight loss lol . I understand how you are feeling but it needs sorting even if it is fibroids. You will feel so much better !
Linda
Morning Everyone me again!
So i did call GP. Just spoke to her. Have bloods on Thursday, then to go in for face to face, and internal. I said i had appointment with woman's health nurse, but Dr said that they are very good with certain things but the Dr is the best for the rummaging!!
The results for the CA125, are they quick does anyone know? When hubby had his PSA bloods done the results once came back the same day, but the other ones were next day.
Anyway, Dr thinks it sounds like fibroids. Either way "out with it" i say womb no longer required, for sale, one careful owner
Hi again Quitit23, well done! I am so so glad you did this. Not sure about time for CA125 results but they’re not always definitive anyway for endometrial stuff. Please do let us know how you get on. You’ve made my day as I was concerned about you.
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