Hello
I am feeling very, very low right now. I should be happy, last bloods and CT showed that the sod (best name I could come up with) was halted by radiotherapy.
Problem is I am just waiting for it all to start up again. I feel doomed. I am doomed. Not expected to last more than 18 months.
Nobody around me can understand my feelings. It is so lonely. I get told not to be sad, asked what I 'fancy' doing, so we don't waste time.
I am so bloody sad I cannot understand the world I am in. I cry and nobody knows what to do with me. It is draining everybody.
I hate this so bloody much.
Hi JB2022 , i am so sorry to read your post and i am sorry to hear how you’re feeling. I believe all these feelings are totally understandable you have certainly been though and the positive to take on this is that the radiotherapy has halted the sod as you put it which is good. But I understand that the whole picture is so hard to deal with. May I suggest if you would like of course joining the group Living with incurable cancer forum - patients only as well, as i know all those in the group know exactly your feelings and are a really super group of people very supportive and also have tips they have found that helps them. I know there is times when speaking with someone in the same situation really helps. We have absolutely wonderful people here who are also part of the incurable group too so exactly the same cancer. I will say though that everyone here is so supportive and i know they will do everything they can to help. I would also suggest phoning the support line when you can as they can give information about local support too. Are you registered with the local hospice? I know they can do everything from pain support to arts and crafts in some to help ease the mind as much as possible, with all those thoughts running though your head.
sending some gentle bear hugs
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Hi JB2022
I was also sorry to hear that you are struggling. I agree with GBear and we at the incurables group know how you feel and have felt the same at some stage. We also get down days and can understand the view of - what's the point it will get me in the end. If you are up to it, try writing your profile so that people can get to know you and to save you repeating yourself. Click on your username to write your profile and don't forget to save. It can also be a bit therapeutic as it's there in black and white, all you have been through and made it out the other side. There are new treatments coming through for womb cancer. I am stage 4 and my latest oncologist letter said that the future is bright! ......I'll wait and see.
I hope you're in a bit better place today, take care,
A x
I am glad to hear you find the incurable group helpful JB2022.
What is a Community Champion? Womb cancer forum
Call the helpline for free on 08088080000, 8am to 8pm everyday.
“let hope be your lighthouse beckoning you though stormy seas" - Jessica de la Davies
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