I think it's come back

Hi Ejax 

Sorry to hear that you are worried and fearing the worst. I've just read your profile and could it be that these symptoms are a continuation of the previous problems you had post op? It may be the CT is to investigate this fully perhaps. I am a different stage to you but my follow up is by CT and if there are any changes to my health, they would do a CT earlier. Is it not just standard that they do a CT for any changes regardless of the symptoms as this is the quickest and most thorough, I don't know. I am not trying to dismiss your worries because I think we would all be the same, worrying about results. Every twinge or pain and I'm thinking is it back.

I really hope it's not a return for you. No one wants to give their family worry but it can't be helped, it's not your fault. Let us know how your appointment goes and good luck for your results,

A x

Just a thought but could your GP contact the hospital on your behalf? Mine did when I was waiting to hear from the consultant. Might be able to put your mind at rest

Hi Sistermoon, thank you for your kind words and for taking the time to try and make me see this more logically...I really hope that it is an ongoing post op issue that has come back, although I don't feel like I have done anything different or excessive to what I had been doing.  

I still haven't been given an appointment time for Thursday yet so will need to call then again if I don't hear anything by Tuesday but will update you all once I know more.

Thanks again.

Hi Jane2511 - Thanks for your suggestion and I will bear it in mind.  I am supposed to be having an appointment this Thursday so I think I will just have to wait and see what happens...if for some reason the appointment doesn't go ahead then I will definitely see if my GP can assist.

Hi Ejax, I appreciate and understand that you’re worried. For those of us who have had cancer, worry about possible recurrence is never far from our minds. Just to say that I imagine your CT may have to go to an MDT before you get the result so that may also account for the time it’s taking, I’m not sure the GP could do anything more than you could really by phoning your consultant’s secretary or your CNS. The waiting is horrible, but I hope Thursday comes quickly for you.

Hi all - Back from the hospital and it's mainly good news as no sign of any reoccurence which is a huge relief although still not sure where this fluid is coming from as they couldn't see any on the scan.  The only thing they did say is that I have a cyst on my pancreas which they will send to the upper GI MDT to look at just to check it's nothing more serious, so keeping everything crossed it is just a cyst and there won't be any tests etc involved.   My delightful (not) consultant referred to me as a VOMIT (victim of medical imaging technology) - however they can call me what they want as long as this cancer stays away.

Thanks for all your kind words of support.

Hi Ejax, I’m glad you’ve had some reassurance and hope you get more good news re the pancreas cyst. I just say I’m disgusted at what your consultant said to you. He probably thought it was “amusing” but it’s insensitive and vile. If it was me I’d contact your hospital’s PALS and give some feedback. I did this during my cancer treatment and got two apologies.