Newly Diagnosed

Hi LeG32, welcome to the group and well done for posting and reaching out for support. I feel for you with the shock you’ve had and can still remember clearly when I was told. I’m just over a year now from diagnosis - had my hysterectomy in January 2022. Have you been given the contact details for your CNS (specialist support nurses)? The Macmillan phone helpline is also very good. And we are here on this group - a lovely helpful and supportive group of ladies who’ve all been through it or are going through it. Feel free to ask any questions. 

Hi LeG32 , welcome to the community although i am sorry you have had to join us. I was young when diagnosed too although a little older than yourself when i was diagnosed at 37, well nearly 38 since it was near my birthday when i was diagnosed in 2017. But like yourself i had to have a hysterectomy as my only choice of treatment too. It is a lot to take in and i can understand just how shocked and heartbroken you are, but remember there is lots of lovely ladies here who truly understand the thoughts running though your head right now. Remember no question is big or small and everyone will do their best to answer. Marmitefan59 has already given some great advice about the support line. You will be allocated by your surgical team a clinical nurse specialist or CNS as we all like to refer them by they are a great source of information about your treatment and they are also your go between yourself and your consultant. You will find that it maybe information overload when you see your consultant and everything that they are going to do etc. one. Thing i found helpful is just to take each step one at a time, i had all kinds of things and the what ifs and believe me it really doesnt help us to think these things but definitely easier said then do, we are all hear for you and everyone of the ladies here are absolutely amazing so supportive and helpful and we all know how it all feels and are happy to share experiences of our own treatment.

but for now i just wanted to send you a gentle supportive bear hug

Hi LeG32 . Welcome to the group. I completely understand, although I am older than you I was told all along by GPs and consultants it was very unlikely I would have endometrial cancer as I was too young / too slim etc. Then to be told the opposite overnight is a hard one for your head and heart. One day at a time and just know you can always hop on here to share your worries or to get feedback from all the lovely ladies here who have been through the same.

Hi LeG32,

Welcome to the group. I'm sorry to hear that you are struggling to come to terms with your diagnosis. It is a lot to take in and puts your mind in a whirl. It's early days yet and it's understandable, it's a lot to cope with. If you've not been given a Macmillan booklet - Understanding Endometrial Cancer, it is available to read online on the Macmillan site. It really helped me at the beginning. All the ladies here are very helpful and supportive, they all have a lot of experience. If you want to read about each person's history you can click on their username to read their profile. It's a good idea to do a profile yourself and saves you repeating yourself.

A hysterectomy is the usual first line of treatment for this cancer and I can understand that it must be a double blow for someone of your age with the potential loss of fertility. This is a whole separate issue for you and one to discuss with your doctor's or CNS. We always say it's best not to ask Dr Google as the information can be misleading and is not up to date.

Keep in touch and let us know how you are doing. There is always someone here for you.

A x

Hi LeG32, welcome to the group. I received my diagnosis of endometrial cancer last Thursday and it’s an up and down rollercoaster of emotions. At the moment I’m still processing the information but I can tell you that if you come on here you will find an amazing bunch of people who will support you. I have found it a great help and even though I’m scared I don’t feel alone. Take care of yourself and sending hugs xx

Hi I too have just received my diagnosis and I agree it’s very difficult to come to terms with. I am twice your age and so mortality is perhaps more on my mind though still not ready to just say goodbye to life even though I have many loved ones who have. 

i have already been comforted by the support here and I am certain that you will be too. This is a safe space 

My mam is 88 89 in April surely  they won't operate on her they want to

Do a internal examination but The gp told me it's painful, how can you do this to an 88 year old 

What kind of internal examination? Actually I wouldn’t put too much on what a GP says as they are not specialists. Has she been referred to a gynaecologist? They use ultrasound which is painless and another procedure called a hysteroscopy they can administer local or other anaesthetic. They don’t want patients to be in distress.

Well it was the Gynaecology that told me that it would be uncomfortable and painful she's  already had a scan on her pelvic area which  they said they couldn't get an image and that it showed her lining was thicker than normal which is why she has been referred.

Hi Domino2016, as I just said to you in your own thread, if it’s a hysteroscopy she can request to have it done under general anaesthetic.