Chem reaction

Bless you Crocus and well done for getting through all that you have already. I’m sure some ladies will be along soon who’ve had reactions - I know Madesp and Robin27 both did and will be happy to share and support. 

Hello crocus 

Well done completing the radio and brachytherapy.

So sorry you had reactions to chemo. I had Paclitaxel and Carboplatin but only managed three Paclitaxel/ carbo cycles as suffered severe allergy reactions to the Paclitaxel and so continued with just Carboplatin for the final three cycles as those were just fine. I'm very lucky that I have only suffered sore dry eyes due to the chemo and seem to be getting better each day. I still don't feel 100% to be honest but I think I'm getting there! I had a good discussion with Chemo nurse who bluntly advised that there is always the risk of fatality with the reaction so I was not prepared to push it. I'm happy that I tolerated the three that I did have and asked about Abraxane but my hospital would not be able to fund this as it's very expensive. 

I think I did write about this on the Chemotherapy thread within this forum in Womb cancer Group if you wish to read it.

Hope this helps but feel free if there's anything else you need to ask. Take care xxx

Thank you Mad. Hope you are recovering.  I have been for Oncology appt on 30th Nov and now booked for Abdo/ pelvic scan. Blood levels keep dropping so trying to find cause. My head says I need details...my heart says "what if?"

Great till I had Chemo.

Crocus x

Hi Crocus

Sorry to hear that you are struggling with Chemo. Like Madesp I also had reactions and infections which resulted in reduced doses and I couldn't manage the 6th cycle. 

When do you have your scan? I hope that this will get to the bottom of things for you. I know its easier said than done but try to stay positive and remember you have successfully completed Brachy and Radiotherapy. 

Please keep us posted we are here for you.

Big hugs Robin x

Hi. No date for scan yet . Hope soon.. Will let you know...thx for responding x

Hi Crocus

I am feeling well and have my next appointment in February. I should add that I feel incredibly lucky that chemo does not appear so far to have damaged my body only my eyes affected so far but they are getting better by the day, I realise it could be much worse, Oh and my hair is growing back nicely after losing about 50% of it during Chemo. I am discharged from Oncology and will be seen by gynaecology department. My latest scan and bloods were good and I hope you will also get some positive news when you get your scan and next bloods done. You say in your post your blood levels are dropping but I'm unsure what you mean. My blood tests were all within normal range and Ca125 was low at 8 which is excellent, what was yours if you don't mind sharing? xx

Hi So glad things going well for you. Not got my actual bloods figures  but Consultant said haemoglobin levels low. Waiting for GP to receive so I can look on NHS app. Will get back to you when I know. She queried if I had had any blood loss...but I haven't.

Next appt 21st Dec. Xx