Assessment done

Bless you Poppy. Thinking of you. What (probable) stage is it? 

Sorry I forgot that bit.  Stage 1b. Xx

Hi Poppy123. I was also stage 1b/grade 3 serous. I was offered just 3 sessions of Brachytherapy as an optional extra.

I would say, if you get the chance push for chemotherapy as well - my cancer metastasised after 8 months.

I've just finished my 6 cycles of chemo and can say , apart from the baldness (hair will grow back) and peripheral neuropathy (numbness in fingers and toes - should end) I feel really well, especially on a lovely day like today, even if the wind is cold.

Have you got a date  for your surgery? It normally follows the pre-op assessment quite quickly.

I'll attach the link what to take in my overnight bag useful for when you have surgery.

Sending hugs, Barb xx

• Hi Barb. Thanks for your reply and advice   I spoke to CNS yesterday and she checked if there was a date for my op but nothing yet.  She said staff shortages are affecting operations.     I might phone consultants secretary next week to see if she has more news.    
  
  I have just been out to top up bird feeders and you're right it is cold but a lovely day.  
   I will update you next week and once again thanks.  xx

Hey Poppy, just wondered how you’re doing today? The sun is shining here and we have blue skies even though it’s a tad chilly in the shade. That word “aggressive” is scary isn’t it - I’ve often thought that a different word might be more helpful. How are you feeling about the op now that you’ve had your pre op? Do they think it may be laparoscopic? Were you given any idea about how soon your date might be? I’d encourage you to have confidence in your consultant and the supporting team to make exactly the right decisions for your surgery and any subsequent treatment. By all means do your own research but I’d encourage you to be careful where you look and who you listen to. Your own medical team are best placed to work out what’s right for you individually. 

Hello again. Thank you for your message. I am feeling ok again today, bit of a wobble yesterday but I suppose every time we get a bit of bad news it knocks us for a minute. I was heartened to hear from Barb telling me she was graded the same as me and shes still going strong in mind and body. I know what you mean about getting information from reliable sources. No Mr Google for me.  I think I will ask my questions on here. I am having key hole surgery with some radiotherapy after.  It is very scary but I will put my trust in my surgeon and the team. No idea when my op is, Ill phone next week to see if theres any progress. Im sure he wants it to be asap. 

thank you again. Really perked me up hearing from you two. Ill keep you posted. Xx

Hi Poppy, I understand where your coming from, it is definitely scary.

I was first unwell at Christmas (heavy bleeding) and my GP referred me to gynae in January, was told after a couple of weeks it was cancer of the womb lining, but they thought they’d caught it early. Had a full hysterectomy 7 weeks ago and am recovering well from it. I was then told it was more advanced than they thought, as it had spread to the muscle and surface of the womb. It was such a shock to be told it was Stage 3 and they thought I’d have to have radiotherapy. However MDT decided I need both chemo and radiotherapy and I’m see the Oncologist on 19/04.

Everything has moved really quickly and it really gives you such a fright, you don’t know whether you are coming or going. Good luck with your treatment. Thinking of you.  

Karen x

Hi Karen.  Aw bless you, its bad enough going through it once but to be told after your op that it had spread must have been awful. 
Good luck with the chemo and radiotherapy   I will be watching to see how you are getting on   I cant wait to get everything removed, at least we've got a fighting chance then.  Im having radiotherapy too  

I will report on here when I get my date   You take care of yourself.   

Maureen  xx

Bless you Poppy, take one day at a time TRY NOT to google as there's no certainty in anything right now. Once they come back with plan then seek advice, recommendations, remember there are many lovely ladies on her, me included that have grade 3. Once over the shock (Diagnosis local hospital told me it was Adenocarcinoma but couldn't agree grade until MDT meet at other hospital where I had my op).

At pre assessment I asked consultant and he was amazed that I hadn't been told the grade, to be honest I was shocked it was high grade, he ran through me what would happen next etc and emphasized that I would need Chemotherapy. Even before the op.

Different ball game when finally got the histology results and letter mentions consideration/discussion with oncologist at next appointment of Chemotherapy. That sent me into a spiral, should I shouldn't I, in the end I did opt for chemo as oncologist said that it was reassuring that there was no LVSI omentum clear nodes clear( but they only sampled 6). But emphasized it was not a guarantee that there wasn't a cell somewhere in my system waiting just waiting to set up home somewhere.

NowI feel better knowing I made my choice, but again nothing is guaranteed but I'm determined not to let this take over, I'm being positive for me and my family who have been through so much already. I keep thinking how 'lucky I am' There are many not so fortunate, there's hope, don't lose sight of this. Wishing you the best outcome. X

Hi Maureen.

It was a shock, but we’ve got to get on with it and are definitely fighters. Good luck with your treatment and let us know how you are getting on.

Karen xx