Panic re grade

Hi cbwc. Before my op I was classed as Stage 1a/grade 1 after op and histology results I was stage 1B (penetrated more than 50% into the muscle) and grade 3  high serous. (My CNS described it as angry looking)

I just had 3 sessions of Brachytherapy a few days apart 6 weeks after my hysterectomy.

So come on girl, stop struggling (and googling!!!) hoist yourself back up out of your pit of despair and think POSITIVE !

Take you mind off things by clearing out your kitchen cupboards (again) amazing what you find at the back - I think the worst in mine was a solidified jar of a herb some recipe had called for back in the day!  - The back in the day expiry date was 2015!!

Big hugs, get your case packed, Barb xx

Thank you xx

I was staged 1B Grade 2 after pipelle biopsy and MRI scan No hysteroscopy After surgery I was regraded Stage 3A Grade 3  endometrial adenocarcinoma with the tumour penetrating the uterus wall I was offered pelvic radiotherapy but decided against it I saw my lovely surgeon regularly for almost Five years and here l am seven years on and fit and well with no problems whatsoever Try not to worry and concentrate on improving your general health as much as you are able Wishing you the same good luck that I have had

Best wishes petronella xx

Thank you so much xxxx Love to you x

Hello cbwc I wasn’t given a grade before my treatment. I was only told I had a rarer, high grade, aggressive type of cancer. Histology after the surgery showed it to be grade 3 serous endometrial adenocarcinoma. I had surgery, chemo and radiotherapy in 2016 and have been well since then. I had checkups every 3-4 months for 2 years, then every 6 months for 3 years. If all is well at my next review they will discharge me from clinic. There are never any guarantees with any of this but I hope this encourages you a little. 

Hi, CBWC,

I had my hysterectomy just over two weeks ago, I’ll tell you you WIILL feel a relief after your surgery that the main event left the building. 
pre op I was informed my cancer was the aggressive type grade 3 - my surgeon and the CT scan saw that it hadn’t spread outside the uterus…. So…. I will find out on 27 Oct what histology reveals, and what the next steps are … possibly brachytherapy from what I’ve gleaned from both here and my other literature.

I completely understand how you must be feeling , it’s very scary, I have no husband but some good friends who support me but I never felt so vulnerable since my diagnosis. I go through periods like the stages of grief, denial, anger, bargaining, depression…. But overall I do try to stay positive and I’m trying to live with uncertainty. ‘High grade’ is not what any of us want to hear - and the waiting game is horrendous- I’ll find out what stage in a couple of weeks. 
BUT - and you will read from other survivors on here - this is not the death sentence it once was - science/ research is amazing now…. And the four week wait for surgery although agonising - I could not have got this sooner even privately. 

Stay strong. You are not alone. 
Sue. 

Thanks Sue. Think were at a similar part of journey. I also had my hysterectomy 2 weeks ago on Tuesday. I was so happy to just wake up and realise I was alive! Then had results back on  Thursday and it was much higher grade than anticipated - moved into cervix. Needless to say I'm struggling yet again with this latest bombshell. I have to have more scans and then some radiotherapy and chemo possibly. I really hope your results are better and I'm so touched by your support when you're facing your own battle. 

Let me know how you get on. Much love to you xx

Thank you so much. Sorry I missed this somehow - you must think me very rude! Really appreciate it xxx

Hi, thank you for your reply, my heart goes out to you, it is so, so hard to manage all the emotions that go with this horrible disease - yet we know for our sanity (and immune system)  we cannot let it consume us, often easier said than done! I even hate the heparin injections,  I’m at the mercy of friends to do them for me as I couldn’t contemplate doing them on myself.

stay in touch let’s share the load. 
and trust in the professionals - anything post surgery is belt and braces to blast any rogue cells that may have gone under the radar - worrying though the obvious thing we do - won’t change the outcome.

Stay Positive.

Let’s do this. ️️️

Sue. XX 

xxx