Endometrial cancer

Hi Teah,

Welcome to the forum, although no-one really wants to be here. It sounds as if you've got the best level of cancer (if you have to have it). I was 1a, but grade 2, but just had a hysterectomy. I regard myself as lucky!  I had keyhole surgery which is marvellous, and I recovered well at 72 years old. That was 4 years ago now. The operation was not as bad as I expected, and the pain was only like a bad period pain (I could barely remember them!) I'm sure you will be fine. xxx

Hi thanks for the reply.they are starting my op key hole and hopefully continue that way but have warned me might have to change to open because of my weight and past surgery.weirdly it's not pain I'm worried about .I think it's that they might find more or that it's worse than they think .I've been working all year and feeling rubbish.since being home school hols Im so tired .but not sleeping well either .I'll be glad when surgery is done.im Sure I'll be ok thanks xxx

Hi Teah

Similar story stage 1a.....

I'm 12 wks post hysterectomy inc ovaries & tubes.

No further treatment necessary.

Nothing but praise for the Drs and Nurses from start to finish.

Forever Grateful

Hi and welcome to our little group of supportive ladies. We've all been on this roller-coaster ride so we know exactly what how scared you are but you're not alone, we're all here to help you.

It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. 

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful. If you have to have surgery.

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.

Sending you welcoming hugs, B xx 

Hello Teah, I'm just at the start of the journey too. Was told two days ago that I've got  stage 1 endometrial cancer. Waiting to have scans to check it hasn't spread. They're hoping to do my operation by keyhole but am worried as I'm very overweight.  Also had previous surgery so hope it doesn't make it more difficult. I'm 59 by the way.

Fingers crossed we both get good news. X X

Hello Bubble59

I weighed 22 stone when i had my keyhole/robotic hysterectomy 3 mths ago.

I assumed my size would be an issue also and expected to be asked to lose weight before the procedure could be done. But this wasn't the case.

What i would say is that post op i experienced extensive lower abdominal bruising (fat rolls). I accepted this was due to my size and it extended my recovery by a couple of weeks ie getting in and out of bed and off/on chairs etc....

Hello ,

I would like to add my welcome to the wonderful replies you have received. Being diagnosed with cancer really is a rolla coster ride. Your emotions will be up and down, worrying about what is next. I was 37 well 9 days before my 38th Birthday when diagnosed so pre menopause but because of periods for a long while they assumed it was just fibroids but of course it wasn't. But the hospital  i had my hysterectomy are incredible made it all very do able and i was staged 1a grade 2 but the hysterectomy was my only treatment. The worst bit I found was the waiting it always seems forever, after your op you wait around 3 weeks generally for your final staging and if any of treatment is required. Of course the days of covid make things more stressful because of visitor restrictions etc. I went yesterday to see one of my oncologists and the hospital procedure to protect people from covid was very impressive and I felt so comfortable there, all these things are important. Oh and don’t worry at all you certainly wasn’t waffling and i can say here with different stages and grades and treatment there is usually always someone who can share their wealth-of experiences and knowledge, your not alone.

Sending you some gentle bear hugs  and good luck for Monday. There is a thread in this group https://community.macmillan.org.uk/cancer_types/womb-cancer-forum/f/womb-cancer-forum/217904/what-to-take-in-my-overnight-bag which you may find useful.

Hi I'm about 16 stone now had gastric bypass about 8 years ago was 24 stone.lost 10 st.found 2 in lock down And menopause. Covid visiting is a worry my husband got leave me at hospital at 12 with dressing gown, slippers and wait for phone call .won't know when I go down etc .1 visit 1 hour a day .it's all the not knowing.i might be in one or 2 nights if keyhole.longer if open .my pre admissions check very good and thorough had to go alone though.i know it's all been very quick.since referral and diagnosis but I've had symptoms for over a year .I've got p.c.o.s and menopausal so just kept thinking just that .thanks all I know at moment it all looks good fingers crossed .I will keep you posted xxx

Hello Teah and Bubble59

I am 57 and I had bleeding on and off  for about 13 months that I put down to menopause but finally made the decision to see my GP who sent me to the hospital.  I had my hysterectomy on  25th May for what they thought were lots of fibroids. I was 15 1/2  stone and had what the consultant called a cesarean cut but this was due to my anatomy rather than my weight. I was allowed home on the 28th.  It turned out it was cancer grade 1 stage 1a so no further treatment. I was on paracetamol and  ibuprofen for about 2 weeks after I got home but the pain was very manageable. 

I  wish you both all the very best with your ops. Take care xx

Amycdi

Thanks True, I'm 23 stone. Did you have laproscopic surgery? How long was you in hospital for? 

Hope you're doing well now. X