what now?

I hinted in another post about i had a few things to say and its what now? I have really been struggling for a while with fatigue and back pain that seems to radiate round into my abdomen. I had a situation in June where i had a bad pain flare and ended up in A&E the Doctor sorted me out with some great pain relief then sent me home. The reason I went there was because I couldn’t pass water so they had to ease the pain spasms in my back that was causing nerves in my arms and legs to be really painful and to prevent me passing water, I have recurring UTI so I thought perhaps it’s that. I had blood tests done no sign of infection fantastic, me thinks. Well that was the start of some strange stuff. I went back to my Gp after i had some incontance issues after yet another pain flare and how I was still getting really bad fatigue and she told me that my blood tests that i had at the hospital were a bit wonky (i love the terminology) i am thinking all i was told was there was no sign of infection, i get told that they are sending me for an spinal mri and also refer me to the back pain specialist to see if there is a way to try to ease things and prescribe some anti inflammatory drug . Now granted I do have spinal issues so it would be no surprise at all if they are getting worse. The Gp also said she was sending a report to my oncologist because they are concerned about what is occurring. Well fatigue is very much frustrating now i am finding i can simply nod off without warning and i dare not seat too long anywhere just in case. So if i am out i use all my adrenaline just to get home  and then all I really want to do is sleep. Ok yes frustrating but I just think I will have to put up with it. Anyway i had another bad flare up with nerve pain last week my fingers cured up all on their own i had to forcefully straighten them then hold my arms against my legs in some weird attempt to stop them curling again but its made my hands and fingers very sore typing. Again I thought this is frustrating but let’s hope when the report is sent for the scan it will show what is wrong, and sort something out. Well over the weekend it nearly broke my spirits, i am pretty gutsy and will often hide my pain especially well so that no one knows except me I have a very high pain tolerance but Mum knew something was bothering me, well i was getting what felt like period pain i am kinda laughing thinking I thought that kind of pain wouldn’t come back I've had a hysterectomy. No what the problem was bloody stools, so i had a couple of days of bleeding from the back passage every time i went the loo,t not much and it seems to of stoped so I thought I will contact my CNS myself since its bank holiday and my Gp is not open until tomorrow and I find that they are not about either but I have left a message. Had it carried on then it would of been 111, but it did ease for now but i am keeping an eye on things. it seems clear to me that there must be some trapping of nerves maybe not completely but intermittent and so hopefully when i see the back people on Thursday I will get some answers but I knew i had to report the problems to my CNS as my Gp had said to keep them updated myself as well as them. So hopefully I will get a call back tomorrow I hope from my CNS as i hate leaving messages and of course I couldn’t really say everything as it’s something i need to describe to them.So thats why its what now?