I hinted in another post about i had a few things to say and its what now? I have really been struggling for a while with fatigue and back pain that seems to radiate round into my abdomen. I had a situation in June where i had a bad pain flare and ended up in A&E the Doctor sorted me out with some great pain relief then sent me home. The reason I went there was because I couldn’t pass water so they had to ease the pain spasms in my back that was causing nerves in my arms and legs to be really painful and to prevent me passing water, I have recurring UTI so I thought perhaps it’s that. I had blood tests done no sign of infection fantastic, me thinks. Well that was the start of some strange stuff. I went back to my Gp after i had some incontance issues after yet another pain flare and how I was still getting really bad fatigue and she told me that my blood tests that i had at the hospital were a bit wonky (i love the terminology) i am thinking all i was told was there was no sign of infection, i get told that they are sending me for an spinal mri and also refer me to the back pain specialist to see if there is a way to try to ease things and prescribe some anti inflammatory drug . Now granted I do have spinal issues so it would be no surprise at all if they are getting worse. The Gp also said she was sending a report to my oncologist because they are concerned about what is occurring. Well fatigue is very much frustrating now i am finding i can simply nod off without warning and i dare not seat too long anywhere just in case. So if i am out i use all my adrenaline just to get home and then all I really want to do is sleep. Ok yes frustrating but I just think I will have to put up with it. Anyway i had another bad flare up with nerve pain last week my fingers cured up all on their own i had to forcefully straighten them then hold my arms against my legs in some weird attempt to stop them curling again but its made my hands and fingers very sore typing. Again I thought this is frustrating but let’s hope when the report is sent for the scan it will show what is wrong, and sort something out. Well over the weekend it nearly broke my spirits, i am pretty gutsy and will often hide my pain especially well so that no one knows except me I have a very high pain tolerance but Mum knew something was bothering me, well i was getting what felt like period pain i am kinda laughing thinking I thought that kind of pain wouldn’t come back I've had a hysterectomy. No what the problem was bloody stools, so i had a couple of days of bleeding from the back passage every time i went the loo,t not much and it seems to of stoped so I thought I will contact my CNS myself since its bank holiday and my Gp is not open until tomorrow and I find that they are not about either but I have left a message. Had it carried on then it would of been 111, but it did ease for now but i am keeping an eye on things. it seems clear to me that there must be some trapping of nerves maybe not completely but intermittent and so hopefully when i see the back people on Thursday I will get some answers but I knew i had to report the problems to my CNS as my Gp had said to keep them updated myself as well as them. So hopefully I will get a call back tomorrow I hope from my CNS as i hate leaving messages and of course I couldn’t really say everything as it’s something i need to describe to them.So thats why its what now?
Oh NannyAnny what a nightmare with your husband, but its sad he wasn’t being kept an eye on after his heart attack. I know my Dad had another heart attack last year after his hernia op. That was odd he got though the op ok but when they came to remove the drains his heart had a wobble! They have contacted him a few times to see he-is recovering ok. Yes its true with regards to the polyp for cancer to be on the top of your list of possibilities and having been thought it both yourself and your daughter. Fingers crossed for you both with regards to your husbands tests, and smack hands to him for eating too many biscuits etc, but they are so nice.
bless you your really being put though the ringer there, hope the transfusions at least have been some help to you. How is everything else going? Any better results for you, I certainly hope so.
As for me, well i should be used to it by now nothing is ever simple or straightforward for me. It’s good I have a wicked sense of humour at times so here it is. Good news everything gynaecology wise looks ok from the examination the consultant did, however she did come across a very tender area around my bladder and kidneys and noticed on the mri scan that my kidneys looked swollen and from the pain in my ribs she reckons my kidneys are inflamed too. She’s getting onto my terrible bedside manner of a urologist i have been seeing because she’s concerned about the blood in my urine, she isn’t too worried at the moment at my bowel but said to keep an eye on things. I should be being discharged from the gynaecologist back to my Gp but she has decided no will keep you on the books at least another six months because they want to keep an eye on things still, because they didn’t feel comfortable discharging me, until I am getting the care i need.My spine well there is still the issues that were there before but no surprise it’s not likely to go away, I got to see the tumour in my t10 vertebrae and i can see that its grown from last time but luckily it’s not causing compression hooray, but they will ensure i am given physio to try to strengthen the right areas. However he couldn’t rule out the nerve damage and pain coming from elsewhere. But felt he maybe able to ease things a bit.
So really I felt totally deflated after my gynae consultation because I had hoped everything was ok, and nothing to worry about in general but i am not surprised i am having renal issues I have been saying this all year to the Gp but it takes a gynaecologist to actually get the ball rolling she was very unhappy and concerned about it. But onwards and upwards!
Thank you everyone for your support, I know you know but you have no idea how much it helps others too.
Big bear hugs 
everyone
Just logged in and read this thread…Sending Little Lamb, Gbear and NannyAnny heaps of love and best wishes. Lots of love 
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A little update, i had a camera investigation just into my bladder and i was rather surprised what it saw. Last week what a whirlwind, Monday I see the urologist who has ordered a bladder camera procedure and a CT scan with dye to have a good look at the kidneys etc. I got a phone call Tuesday, can you come tomorrow for a covid swab as your camera investigation is Saturday and i am going on a surgical ward so obviously covid swab and isolating was important. Saturday they had a really good look inside the bladder and was explaining everything. “There you can see that your right kidney is draining as it should do and it looks ok” he spent a lot of time looking at the other side of the bladder and goes “you see that lumpy bumpy area? Thats your left kidney “ afterwards its “ well your bladder looks ok but more investigation is needed for your kidneys and i am going to make sure a CT scan has been ordered to check your kidneys. I am trying not to go to worse case scenario but it’s difficult not too, this is the first time I have actually seen my kidney so bulky. I get pain in my left rib area and some heaviness but I assumed it was the spine of course I know the spine is ruled out now, although there is problems there it isn’t enough to cause the pain i am getting. So now i am back to the worry of my kidneys, of course lots of reasons for a bumpy kidney, could have kidney stones, a blockage in the tube again, cysts, worse case scenario is that its tumours, of course which could be cancer or benign. But i have to admit that i am worried about it, but at the same time i am thinking its not great to worry about an unknown because its not going to make me feel any better. So i am hoping the CT comes up quickly and I hope i am not waiting long for answers. Fingers crossed 
Hi GBear As you quite rightly said don't waste time worrying about the unknown as it won't make you feel any better. Easy to say, impossible to do. Take your mind off it by doing one of those wonderful paintings!
Big hugs to you my love, Barb xx
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