Womb cancer reoccurrence

FormerMember
FormerMember
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Hi everyone,

New to the group, hope you’re all well...

my Mum was diagnosed with womb cancer early stage in 2019, she had a full hysterectomy and didn’t need further treatment. She was declared cancer free Oct 2019 and was told she didn’t need follow up appointments as she was in low risk of reoccurrence 

she has been getting vaginal bleeding now for a few weeks

had a vaginal vault colposcopy on Friday and the consultant is suspecting a reoccurrence. He saw where the blood was coming from and He has sent a biopsy to the lab.

I am terrified, i dont know what to think, its like iv already lost her. I have been glued to google and cannot stop reading negative information. Reoccurrence just sounds like its the end. 

  •  Hello and welcome to our little corner of the Online Community. I'm sorry to hear about the possibility of your Mum's recurrence of a cancer.

    I would say please don't consult Dr Google, you'll wrap yourself up in knots. Wait until histology is back. Try not to think the worst, easy to say, hard not to do. 

    Here on the womb forum you'll find a lovely group of supportive ladies who have all been exactly where you  and your Mum are now. A possibility of cancer diagnosis brings all sorts of stress and fears and if anyone can hold your hand and reassure you we will. We're all at the start, in the middle or the end of what can only be described as a roller-coaster ride. The ride no-one wants to get on.

    It’s always helpful to others if you write a little something (or a lot) about your Mum's journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.

    If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

    It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer I found it invaluable in my journey. 

    It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

    There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.

    To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section

    Sending you welcoming hugs, B xx 


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  • Hello

    Sorry you are where you are and how it is affecting you.  I know what you are going through because I Recurred 6 month after my hysterectomy.  It is a horrible situation and I like you googled and it may me quite ill as I was reading everything and some did not apply to my situation. My cancer can back at the vagina vault i had salvage brachytherapy and I have been in remission for 2 years. My initial diagnosis was Stage1A grade 1.  Please don't think it is over stay strong for your mum.  Sending hugs xx

  • Hi I am going through this at the moment  .as I don't know your mum and every one is different  if it is back there is still stuff they can do.good luck.i read mainly on macmillion  site and ring my specialist  nurse to get things clear in my head.good luck.

  • I hope you're doing ok now!

    It's so unfortunate for you to get a recurrence after the initial diagnosis of Stage 1A grade 1 - they say the chances of recurrence are slim with that, I thought! I hope you were frequently monitored though so this recurrence was spotted promptly!

  • Hi Glass not Full I had bleeding and I called the hospital and it was found through examination. I was lucky it was still grade 1 and the small nodule was removed via the biopsy. I'm 5 and half years on and hopefully to have met in the 5 year NED. Most of my contact is has been through telephone appointments . Hugs Dawn

  • I suppose Covid didn’t help hence the communication via phone.

    Wonderful news re the 5.5yrs though!!