Feeling shell-shocked - post-hysterectomy results confirm I HAD cancer

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I was diagnosed with complex atypical hyperplasia and had total hysterectomy BSO last week for suspected cancer, going into to surgery having been told there was a 50% chance of cancer ebing found in post-op histology.

Today I had my initial histology results, which confirmed endometrial cancer, grade 1, stage 1A and told I don't need any further treatment.

Tears, relief, gratitude so far, but I'm feeling confused emotionally. I HAD cancer. I've had surgery so I haven't got cancer anymore. It feels weird.

I guess this is normal and I just need time to process all the emotions.

x

  • Hi Sparkly Fireworks,

    You are feeling very much like I did. I was grateful to the surgeon for getting rid of it. I held things together until I got out of hospital, then burst into tears on the way home!!! 

    Now, enjoy your life again (Covid permitting!!) xxxx

  • Glad to hear you don't need any further treatment.  When I had that news I had to sit in a cafe for a while to let it sink in.  I didn't feel all excited, I suppose I was just relieved.  You still have a little way to go, to get over the surgery.  So it's not quite like you dance out the door and book a holiday!  Life is never quite like the movies.Relaxed  Still, it's good news.

  • FormerMember
    FormerMember

    Hi Sparklyfireworks,

    How shocking for you! To get all the way through it and then get that news, not surprised you feel emotionally confused.

    I'm still awaiting my hysterectomy for CAH I'm painfully aware of the possibility of this outcome.  I'm think I'm dealing with it but even though I knew hysterectomy was a possibility after hysteroscopy, I was still shocked at the news and cried like a baby for more than a week. 

    I think the enormity of it all is overwhelming and whilst we're focused on tests and investigations and surgery, we're not really processing it so it spills out every now and again often at unexpected times or in confusing ways.

    I intend to use the post surgery time with reduced activty and responsibilities to do the processing so maybe just let yourself feel it, you've been through so much physically and mentally.  Maybe now isn't the time to understand how or why what you feel but just a time to feel it. 

    • Sending hugs,

    R

  • Thanks ladies, glad to know my emotions are to be expected right now. I think you're right RoseG - I just need to let them be and allow myself to feel them.

    @NannyAnny and @LittleRunner  so glad you also had same positive outcome. We've been very lucky.

    sending positive vibes that you have a positive outcome from your op too. Have you got a date for it yet? I hope you don't have to wait too long now 

    x

  • No idea why only one of the name tags worked?!

  • FormerMember
    FormerMember in reply to SparklyFireworks

    Thanks Sparklyfireworks

    Early November for.my surgery but I've been warned it may be postponed with covid cases on the rise.  I'm hoping it goes ahead asap - I'm so distracted I'm not functioning properly at all! 

    Take it easy and get someone to bring you chocolate and tissues!! 

  • Oh SparklyFireworks I'm so so pleased for you. You are one of the winners in this!  YOU HAVE SURVIVED CANCER!!

    I can honestly say I'd never felt numb (except at the dentist) until I heard the words I had cancer. My TLH &BSO removed the cancer but the peretoneal wash has revealed a few malignant cells, otherwise I'd have not needed further treatment.

    Before my shock diagnosis I'd not had sudden weight loss, pain, tenderness nor anything else, sailed through my menopause with just a few hot flushes and no problems. It was just 5 spots of pinky blood in my undies, nothing heavy, which I mentioned as strange to my bestie and she insisted I get it checked. After all the tests to be told I had cancer was unreal - not me, can't be me!

    Anyway, I'm optimistic, just worried in case Covid impacts on my Brachytherapy.

    Go ahead, shed a few tears, or a shedload, enjoy the feeling of relief but above all feel gratitude to our wonderful NHS, now get back to normality! I think the thing about all of this I've become so determined to remind all my female friends to get anything abnormal checked out. I wasn't going to bother to get it checked, didn't think it was worth bothering the doctor. I talk to my friend, who I haven't seen since May and suddenly get all emotional thinking you might have saved my life.

    Sorry about the rambling, I'm letting my emotions run away with me. 

    I'll change my name to BooHooBarb!

    Big hugs to you, Barb xx Hugging


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  • I have everything crossed for that you get a date for November and not postponed. My surgery was postponed one week after initial date as some one else needed more urgent surgery, but I was very grateful I didn't have a long delay and was surprised given the covid situation. Please keep us posted on your date for op.

    x

  • thanks so much for your kind words. I hope your brachytherapy isn't delayed.

    I had a long chat with Macmillan nurse today to ask the questions that I thought of since the call. The results came so early I wasn't prepared for the call and so didn't ask enough questions. Now I will wait until my first follow up appointment and ask my surgeon. xx

  • FormerMember
    FormerMember in reply to SparklyFireworks

    Hi Sparklyfireworks

    Good to.hear the McMillan nurses were able to help you today.  I'm wondering if you called them before your the post surgery results confirmed you had cancer? I've tried but was basically told I couldn't make use of the nurses becuase I didn't have a cancer diagnosis. I can't fathom that precisely because things can turn out exactly as they have for you. I was invited to call back after I posted in the ask an expert forum but haven't been brave enough to try again yet.

    Anyway, I'm really pleased to hear they were able to help.you and I hope.ypur appointment goes well.

    R