CT results day today not really what I was expecting tbh. So after my first chemo in December the rather large secondary tumour in my lung had shrunk considerably. However according to CT from Monday it has actually pretty much gone back to the original size it was, and the effusion is back as well. Deep Joy !!!!!!!!!!! So no more Chemo as I have apparently become resistant to it, and have been put onto Hormone therapy Anastrozole 1 tablet per day. I'm not sure that I hold out much hope for myself, I know they will continue to treat me, but our options are dwindling. I feel so tearful, I don't want to leave my beautiful girl and my husband I love them both so much. We have worked so hard to build a fabulous reputation for our B&B, it started as a distraction 2 years after our son died in 2016. but we will have to give it up. It has been so lovely to meet some wonderful people that have become good friends, we have no other income and because we have a few grand left in the bank from the sale of our previous house, we wont get help with anything. So started tabs today, and waiting for my Thoracic Doc to get in touch so that he can drain away the yukky fluid on my lung and to maybe put in a permanent drain in place, be nice to actually breathe. Just thought I would bring you up to date. I'm opening a bottle of Red tonight !
LC
X
Stuff tonight, open it now and get to enjoying it! I feel like a takeaway is in order too. Something tasty and comforting, and perhaps even a second bottle. Why not eh?
I wouldn't write yourself off quite yet, there are plenty of folks over in the incurable group who have been given a terminal diagnosis and date of departure, but are years past their sell by date. Random medicines work, new treatments pop up, hail Mary trials suddenly do wonders, and so on.
So take today and go FFS, moan, wail, anything you need to - even the weekend if you need it. Then when you're ready, you'll be able to pick yourself up and crack on with the next step, the next medication, and whatever comes with it.
And of course, you've all of us here cheering you on and doing what we can to help and support you however we can.
You've got this!
Lass
Xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
Oh no , that's a big pile of poop news you have been given. Remain hopeful is important the hormone therapy may work for you. I am hoping the drain will help you breathe so much more comfortably. Thank you for the update I am just sorry to hear it wasn't the news that you had hoped for, but I am crossing my fingers that the thoracic doctor can make you have some comfort at least with your breathing.
Enjoy that bottle of red!
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Oh thank you everyone for your replies. Must admit Lass you made me laugh probably for the first time today, I hope I'm not past my sell by date yet I shall weep and wail and gently stamp my foot over the weekend and then try and get my head together. Wines open ladies.
Thank you all
Xxx
Good good, I was aiming for a smile but overshooting and getting a laugh is even better! ;)
Call it a diva strop weekend and really just go for it, fabulously! You've def earned it!
I'm going to crack open a beer and toast to your good health!
Lass
Xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
So sorry to hear this.. I'm not a doctor but have they told you why you cannot have surgery?? I asked for surgery because I had read it was very effective. the oncologist spoke of the risk of surgery etc however in my case the tumor had been removed via biopsy and I didn't know when I asked and when my husband asked what happens if it came back again what then he said treatment and or more surgery. Take care Dawn xx
Yes Chickpic they told me last November. The tumour is 6.4 cm X 4cm so quite large. The tumour is sitting in the middle of my breast bone, it is touching the main artery in my heart on the left hand side, although it is actually in my right lung if you can imagine it ? I also have 2 lymph nodes in my chest that also have cancer in them. The first thing I asked was if they could operate, the 2nd was RT they can do neither I'm afraid . Thank you for your reply, I do wish they could operate .
LC
Xx
So sorry to hear this. Did you have any idea it might be endometrial cancer in your lung? It seems so sudden. I thought it was usually quite slow growing. I hope the hormone therapy will be effective. Thinking of you at a difficult time.
Hi nightingale. I had been fine til the beginning of October last year, thought I had a bug/virus a bit breathless to start off with, and just really not feeling 100% ? Went to see my GP nothing I could put my finger on, but sore throat ( that was the fluid in my lung btw) and a bit of a temp. The rest is history really, they thoughtyou lung had collapsed. If only ! It had grown very fast I'm afraid. A matter of weeks. I hope the hormone therapy works, fingers crossed.
Thank you,
LC
X
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