Things can turn out well - 5 years on

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Hi Ladies,

It feels like a long time since I posted here & that is a very good thing. I just popped back to say that there can be life beyond cancer. Most won't know me - 5 years ago today at age 46 I had a diagnosis of endometrial cancer. After surgery it turned out this was Stage 3c1, grade 2 - cancer cells in pelvic lymph nodes.

After surgery - they thought all cancer removed - I went on to have 4 cycles of chemo & 4 sessions of brachytherapy as a precaution. After much heart searching I decided to take my chances & turned down external radiation, on the basis of potential life-long after effects and compromised quality of life vs potentially shorter but higher quality time (I should explain that I scuba dive, travel long haul a lot and am generally very active).  Whilst treatment didn't always go smoothly - infection hospitalised me during chemo, 2 upper arm dvts and hence 18 months of clexane injections - I am happy, healthy & cancer free with only very minor effects from treatment.

Through all of this I had great help & support from this group. It really helped me through, despite all the gloomy stories & figures online for my stage. I'm sorry but I'm not very good at emotions so I struggle to return the favour. But I am here just to say stay positive, work with your medical team and things are not as bad as they may first appear.

Onwards & Upwards,

Gillian

  • Hi Gillian

    I remember you and really pleased to hear you are well 5 years on.  I am several months behind you (diagnosed Serous and Clear Cell Stage 1A Oct 15) but also well and enjoying life.  I think it is good to post good news like yours to encourage those who are going through hard times now.

    Very Best wishes xx

  • Great to hear from you , thank you for sharing your wonderful positive message it really does help everyone, especially the newer members who are very early in the diagnosis and treatment. I am also a fellow scuba diver but alais I am currently not aloud to dive very frustrating I miss it but the firm memories are in my mind. 

    Onwards and upwards and long may you continue in good health to enjoy your diving and your flying.

    Community Champion badge_GBear Xxxx 

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  • Nice to hear from you again , I remember you from when I I joined the community and just had my hysterectomy I remember the warm and support you gave and I thank you for that and thank you for your support you give today with your positive message, I am really pleased to hear your doing well.

    Community Champion badge_GBear Xxxx 

    What is a Community Champion?    Womb cancer forum  

    Call the helpline for free on 08088080000, 8am to 8pm everyday.

    “let hope be your lighthouse beckoning you though stormy seas" - Jessica de la Davies

  • I am heading for six years since hysterectomy post pathology stage 3A Grade 3 endometrial adenocarcinoma I declined offered pelvic radiotherapy

    I have had almost six years of excellent health with no side effects and although I know you can never say never re recurrence I enjoy every day and have tried to stay healthy and to be vigilant but not obsessive

    I wish everyone on this website the same 

    love to you all

    petronella

  • FormerMember
    FormerMember in reply to Poppydust

    So lovely to read some happy and positive posts. It really gives hope to anyone currently going through diagnosis and treatment. 

  • Hi ,

    It's good to hear you are doing well, Gillian.  Believe it or not, I do remember your earlier posts when you talked about  your active lifestyle and hence your decision to reject external  Radiotherapy!  I have often wondered how you got on so I am really thrilled to hear from you.  I still think of some of the other posts I read when I first joined in 2015 and hope that they, too, are still going strong. . 

    I think it's really helpful, particularly for those who are recently diagnosed  to hear from people who were treated successfully some years ago. 

    XXXX

    Anne

    (Class of 2015!)

  • Hi Gillian I remember you from the old days under my old name of Katsil. We pm a few times as I couldn't make up my mind whether to have pelvic RT and I know you turned it down as I did. I had a recurrence last year 3 years on in a single paraortic lymph node which was removed by a urologist as it was near my kidney. I was told if I'd had pelvic RT it wouldn't have prevented the recurrence so I still think I made the right choice. I'm glad to hear you remain well and lovely to hear from you again.

    Kate 

  • Hi Ema56 - I remember yourself as well as that is an unusual combination! I am very glad to hear you are doing well too. And fast approaching the 5 year milestone.

    Keep on enjoying life

    Gillian

  • Hi Anne,

    It's good to hear from you, I hope you are doing well?

    Yes I agonised over that one - at only 46 I couldn't face the idea of maybe (touch wood lol) 30-40 years always wondering where the nearest toilet was just in case - bit of a crimp in the lifestyle. I hope the rest of the class of 2015 is doing well too. 

    When first diagnosed, with gloomy stats all round, I remember reading some posts from others who had been diagnosed years earlier and it really helped me. I hope seeing posts such as this one can have a similar effect on others at an early stage in the journey.

    Best wishes,

    Gillian

  • Hi Kate,

    I do remember you under your old pseudo-name and I also remember you being a great support to myself and others along the way, thank you. 

    I am sorry to hear you had a recurrence, but it is good it was treated. Treatment decisions are never easy to make and some of the treatments can be harsh. But I am glad that you were able to arrive at a decision that proved to be the right one for you. It's not an easy one to turn down treatments. 

    Good luck for the future & I hope you remain well,

    Gillian