Vaginal vault brachytherapy experience

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Well I had my first round of vaginal vault brachytherapy yesterday.  Everyone was very friendly but it did seem a bit like the poor relation of the cancer services. It was located in a rather run down basement and I glimpsed the consultant on the way in sitting in a shoe box sized office. We had to carry our clothes around with us because the lockers only took old £1 coins.

I had already completed a consent form when I saw the consultant last month at the oncology clinic so I was just asked a few confirmatory details by the radiologer. Then I got changed into a gown and went into the treatment room. I sat on a couch with a sort of metal bracket on it and arranged my legs either side of this with my knees bent. Then a harassed looking doctor  came in and connected a vaginal insert of the correct size to the bracket on one side and inserted it into my vagina on the other side . I asked for some local anaesthetic gel as my vagina is still a bit sore at the entrance from where I had a vaginal hysterectomy last month. It was sore but not impossible. 

Then I laid back and they tied the whole thing up round my body so it did not move and propped a couple of pads under my knees. I had taken a CD with me which they put into a CD player and turned on. They went out saying if I needed to speak to them I should call out  and they woud hear me over the intercom. It should take about ten minutes.

So I lay there listening to the tracks and hearing occasional beeps in the background. After 4 tracks I called out to ask how much longer but there was no reply. Then there was a rapid set. of continuous bleeps for about 5 minutes. I called out again to ask if it had finished and waved an arm. Still response but ghen the nurse appeared and said Sorry about That. It seemed that just as they were about to send  the radioactive pod into my vagina, the computer had frozen and they had to turn it off and start all over again.

It must  have turned off the intercom as well as she said that she was calling out to tell me this but I could not hear. I said I had waved my arm to attract their attention but the nurse said they could not see me from the room where they operated the computers, I assume because they would normally see me on the computer which  had frozen.  She said the CD player probably  prevented me from hearing me on the intercom  but I don't believe that. The CD was very quiet and only playing in a stand alone player. The intercom was either off or it stopped working with the computer.

Anyway they  seemed unfazed by it. The nurse said they to turn the pc computer off and on again (they being the nurse and a young radiologer) and that the second time it worked. I said I was concerned I might have had double the dose of radiation but she assured ne that was not the case. The radioactive pod was only in my vagina while the rapid contininuous  bleeps were sounding. Everyone assured me it all went OK apart from the false start but it did all seem a bit casual and under resourced. I am assuming they know what they are doing as the consultant in charge won a merit  award from the hospital, voted by his colleagues, 18months ago. 

I was given a confirmed list of appointments and told to return on Thursday. I was warned there might be some blood spots but have not had any yet. I  have written this up in detail to explain what happens at a vaginal vault brachytherapy session. Well mine anyway. 

  • Good lord - what an awful experience for you!  Whilst the computer re-started someone should have come into the room (since there was no radiation going on at that point) to explain to you and support you. Don't they realise how scared you probably were??   I think it's very close to abuse to leave someone trussed up unable to move and unable to contact anyone.  How many more sessions do you need to have and how long since you had your op?   I can imagine you must feel quite sore down there still. 

    I don't know yet if I will need brachytherapy in due course (op next week) but your post has really helped by explaining exactly what happens.  Thank you for posting and I do hope things go smoothly for you next time round and you're never put in that helpless position again.

    xx

  • what a dreadful experience for you.  Thankfully mine was nothing like yours and hopefully yours isn't the usual way the majority of us get treated.  I had already had 25 external radiotherapy sessions and was absolutely petrified about the 2 brachytherapy sessions I then had to face.  I needn't have worried.  The staff were really lovely and reassuring and attentive the whole time. I was treated with dignity and some humour which helped!  There were no computer malfunctions with my brachytherapy but there had been a couple of times with the external sessions and each time someone immediately came to me and explained what was happening and kept me informed, which is what they should have done with you.  

    I hope your next sessions run smoothly for you and this experience was a one-off.

    Hugs, Lesley xx

  • FormerMember
    FormerMember

    For God's sake nightingale am just back getting results told a need brackythearphy mayb bit chemo they still to decide a hope my experience not like that so far so good with treatment what a terrible experience you have had as if this journey not bad enough take care xx

  • FormerMember
    FormerMember in reply to FormerMember

    I had 25 external RT treatments and 3 Brachy sessions. I never had one technical  problem ( lucky me ! ) yes the Brachy treatment is a strange one , but actually when explained why They have to do it the way they do, its because the Vagina will always try and expel anything that is in it ! We had a laugh about the Heath Robinson approach,  one of the Radiotherapists  had to Google it! It all depends as well what Brachy you have I had High Dose done in 3 short sessions, some hospitals can only offer the longer ones. Another thing we were never offered gowns for any examination, just got myself some very long tunic tops and jumpers so that I could retain a little dignity ! Lived in leggings easy and quick to remove. 

    If I can find the link about it the best paper l read was an Australian one. I printed it off for them in the RT  department.  It was very informative for the patient.  

    Honestly the thought is worse than the treatment ( well for me it was) 

    LC 

    X

  • I went home after my first brachytherapy session on Tuesday and crashed out completely for several. Hours. So much so that when my OH came in at 5. 30pm I was convinced it was the next morning. After that it was ok. I had another session on Thursday and again crashed out when I came in but thus time I just got up for my dinner and went back to bed. 

    I didn't have any bleeding the first time but I did have a bit this time and I am really sore on the right side of my stomach, really sore. Two paracetamol have not touched it. No further bleeding though. It's a bit ironic really as  I am in theory cancer free since my operation and the radiotherapy is just an insurance policy because I had grade 3 cancer. Next session is next Tuesday, hopefully it will have healed up a bit by then. Then only one more session, next Thursday. After that I have the dilators to look forward to.... 

  • FormerMember
    FormerMember in reply to nightingale19

    Hi nightingale that's what I have to get too still to see new team waiting on letter within next couple weeks they said that's what mines was told wed stage 1a grade 3 b asking your advice me to told I am technically cancer free dont even no how many sessions or how long ironic isn't xxx

  • Robbk64. I am technically cancer free since my operation which included removal of lymph nodes. Only cancerous part they found was a polyp in my uterus but it was grade 3 (initially diagnosed as serous then post op reclassified as clear cell).

    Both are rare but aggressive and it is generally recommended to have radiotherapy to the vaginal cuff which reduces chance of recurrence from 15 to 5%. MDT recommended 4 sessions and  I had two this week then two more due next week. The oncologist  did not recommend chemo in my case and said he has some other tricks up his sleeve if I do get a recurrence.  If it has been 1a grade 1, I would not have needed any more treatment after the operation. 

  • FormerMember
    FormerMember in reply to nightingale19

    Nightingale that's what my consultant said on wed confined to womb but grade 3 to been sent to new team for further treatment she said wouldn't give me chemo but they will decide defo to get the brachytherapy gave me a booklet on it I never got lymph nodes taken just the complete hysterectomy and pelvic wash think that's what it was I have been bit of wreck but now as ment to b cancer free in there terms worst I have been emotionally it fair puts you through a ringer this journey xxx

  • Robbo64. I tried to duck out of lymph node removal but MDT said it was strongly recommended. It does seem to vary from hospital to hospital. 

  • Hi all, just been reading your threads and I totally understand how you feel having to have further treatment and brachy is what it is (I have had it) when you have been told you are cancer free. But can I just share this I was Stage 1a grade 1 (no further treatment) and I was told I was cancer free however I recurred at 6 months.  I often wonder when the medics say your cancer free what that really means. Now I see myself has no ' evidence of disease' I seem to be able to deal with this horrible diagnosis more constructively.  I wish you all the very best and hope everything goes well for you all. Take care and hugs Dawn xc