Complex atypical endometrial hyperplasia in polyps
FormerMember
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This is my first post and having read through the community I felt it would help me to reach out to you all.
I’m 36, nearly 37 and have been having diagnostic tests over the last few weeks. Had a laparoscopy and hysteroscopy 3 weeks ago to investigate possible endometriosis. The consultant found and removed a number of endo patches as well as two uterine polyps.
We thought they would be fine however I have been back to the consultant (who is brilliant) yesterday and he told me that they found complex atypical hyperplasia cells in the polyps, albeit not in the surrounding endo tissue.
Normally the protocol would be a hysterectomy but as the cells appear contained in the polyps the plan is to re biopsy in 3 months and see if any other cells are found in uterine tissue.
Obviously this is all a bit of a shock and I’m still in quite a lot of pain from the laparascopy so it’s taking energy I’m not in large supply of. I also haven’t had children yet as whilst I don’t know if we will or not the idea that the decision will be taken from me wasn’t one I’d thought of until yesterday.
Just wondered if anyone else had been in this situation where cells confined to polyp and what helped / what action you took?
I just wanted to follow up on what Lass was saying about drug therapy & the coil.
You can absolutely take oral drug therapy without having the coil fitted. I'm currently doing this. I started with low does oral progesterone, which was hopeless for me, then I had the coil fitted with no oral drugs. After 3-4 months there was no change so we added in Megace which lead to some improvement after six months. My coil was removed at that biopsy and due to the pain and infections it caused I am continuing with purely Megace. Some of the oral drugs come with more unwanted side effects so coils are the first line treatment, and can be very successful in treating early stage cancers and neoplasia. However, if it turns out to be unsuitable for you there are still options. Also, don't let my negative experience with the coil put you off, I know people who adore theirs and repeatedly choose to have them fitted.
I was wondering if anyone had their repeat endometrial biopsy done with the mirena in place if so was it more uncomfortable compared to biopsy prior to mirena placement obviously if your first biopsy was a d.c this won't be relevant
2 of my Hysteroscopy biopsies have been done with the Mirena in place, and there was absolutely no difference due to the coil being there.
Sadly the last thing I had done was a myosure procedure. So for that they had to remove the coil then replace it with a new one at the end again. So I'm back in the waiting for it to settle again stage.
Hope that helps!
Lass
Xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
Most people here have gone down the hysterectomy route because the hormone suppression route is really quite a new approach.
As I say, my last two were done with the Mirena in place and there was no difference to before it was put in.
I'm not sure what more you're looking for and why you don't think my experience is what you're looking for? Have you more specifics of what you're looking for so we can try and help?
Thanks,
Lass
Xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
Hysteroscopy has no anaesthetic - local or otherwise - and while there is a camera involved, it's only so they can see where to take the endometrial biopsy from. Which is a pipelle biopsy.
The one with the numbing of the cervix is a myosure procedure at my hospital, because the camera and equipment they're inserting is much bigger, so the cervix needs properly stretched out wide.
Hope that helps.
Lass
Xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
