Chemo Eve

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It’s almost here and I am ready now. I am ready to do battle with this horrible cancer! Plus I have packed my bags and got my snacks organised. The hospital and Focus charity (in the hospital) were great on Monday when I went for my pre- chemo appointment. Everyone is so nice and supportive and there is plenty of information. 
Don’t get me wrong, I am not breezing through this. My partner and I had a terrible weekend. I was told my appointment was definitely with the consultant, not a member of the team. The consultant had previously said he would not see me again unless there was something serious, and as I had not heard the results of my CT scan a few weeks back, I convinced myself I was now at least stage 3. Very scary, but in the event I saw a lovely CNS and there were no unexpected issues. Phew!

I have decided to not have the cold cap. I don’t want any additional pain or discomfort on top of what I’m already going to get. Other people will just have to put up with seeing me in a wig / turban! 

The next worry will be the side effects. This journey is definitely all about jumping from one thing to worry about to the next! 

  • FYI

    i found this useful link re preparing for chemo on the MacMillan site, if anyone needs it

    lymphoma-action.org.uk/.../top-tips-day-your

  • Wishing you all the best, you can do this, and you know where we are xx

  • I hope the chemo goes well for you. 

    We are here if you need anything.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Well, I have now had the first chemo session and one day at home. The session went very well, the nurses were fantastic and my nurse was always watching out for me. Every time I went to the loo ((which was frequently) he was there checking I was OK. He took his time making sure I understood everything (even drew coloured images if the boxes of medicines with his own instructions on!) The hours went by quite quickly as I had brought lots to do. It was quite noisy so I appreciated my ear pods. It was good to have my own snacks as the hospital sandwiches were not very appealing! 

    Apart from a red face, no side effects yet, but am expecting to feel like I’ve been hit by a bus once the steroids are finished!

    On the plus side any cancer cells remaining are going to be hit by a double decker !!! I no longer have to worry that they are taking hold or spreading for the time being, and that it a great relief! 

  • Glad it went ok for you. 

    I had a red face for the first couple of days with each cycle- I believe it is to do with the paclitaxel. 

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm