Had my post op appointment to give feedback on my histology results. Unfortunately it was bad news as my cancer has been upgraded from 1 to 3. Quite a shock and a lot to get my head around. However, I am determined to stay positive and be proactive. So, my question is, is there anything I can do to help prepare myself for chemo? So far I am considering getting a pixie cut, getting fit (within limits if what’s allowed after hysterectomy), and eating healthy. If there’s anything else you can advise to get done beforehand I would appreciate it. Thank you x
Hi
Am sorry to hear that your histology has been not as expected. I can understand that it is a shock to hear that you need chemo. I wasn't expecting mine either.
Healthy eating and staying hydrated is a good idea. Gentle regular walks may help.
I did not lose my hair, although I did have some shedding- but I did scalp cooling. My chemo was carboplatin and paclitaxel. If you are not planning on scalp cooling then it may be an idea to look at getting some scarves, hats, looking at wigs. My hospital had a wig lady and a hairdresser come in every Wednesday am and you should be entitled to a voucher towards the cost of a wig.
Preparing practically can be a plan as well- in the same way as getting ready for the hysterectomy. Things like how you will get to hospital, comfy clothes, food shop, spring clean.
With chemo it can be hard to know how you will be affected until it starts. I found appetite was affected and also taste. Smaller meals and snacky foods worked best. I found lemon drinks, lemon boiled sweets and ginger biscuits helped.
For the first week of each cycle I felt roughest and liken it to when you have a virus- aches and pains, fatigue, snoozing on and off, Duvet and sofa. By the second week I would start to feel better, The third week I would start to go out and about.
Its a good idea to have an accurate thermometer at home as it will be important in checking for the first signs of infection.
You will have a 24 hour number for your hospital and mine was really helpful if I needed support.
Overall I found chemo was manageable and nothing like I expected. The first session was the worst but once that was done and I knew what would happen each time it felt easier. Any side effects I had seemed to follow the same pattern with each cycle and it can help to fill in your chemo diary as this will help when you have your review. Most side effects could be managed with medications. I did find the fatigue built up with each cycle.
Jane
