Is anyone else suffering from Haemochromatosis? I did have venesection to control the iron overload but haven't been for months now.The endometrial cancer and treatment has taken over my life. I know both can kill me but can't face the venesection and no one has contacted me at all about not going.Ive told my oncologist I have it but no one is taking me up on it or advising me.
How is everyone else dealing with this along with cancer treatment?
Hi Glama21
I can totally understand you feeling that the cancer and cancer treatment has taken over your life and it seems very understandable that you feel you can't face the venesection at the moment.
I know for me that any extra appointments or procedures could feel like the last straw for me, especially during chemo.
For me I found that my oncology team focussed pretty much entirely on the cancer and cancer treatments and anything else I was told to speak to my GP. I wonder if it is worth speaking to yours- I know it is hard to get an appointment but I used the online consultations a lot during my treatments. You could mention the haemochromatosis and that you are overdue a venesection and whether this can be sorted or whether it can wait for a short time. You could also ask the GP to contact your hospital consultants directly. Mine did this on a couple of occasions- not to complain but to ask for clarification. It is hard when you have mentioned it to your oncologist but feel that no one is really advising you so perhaps this could be a way forward.
I have come across a fair few people on here who are dealing with long term conditions alongside their cancer diagnosis and I know that it is not easy.
If it would help you could consider giving the Support Line a call and talking it through with one of the nurses. This would be the quickest way to get advice.
Alternatively we have an ask the expert section where you can post directly to the nurses. They normally get back to you within a few days.
(+) Ask a Nurse | Get answers about cancer | Macmillan Online Community
Jane
