Hi everyone, I really need some advice as I’m feeling very alone and overwhelmed.
I’m 39 and was diagnosed with endometrial hyperplasia without atypia. I was started on oral progesterone (Provera), and while the first couple of weeks were manageable, I then developed severe side effects: extreme sensitivity to smells, daily bile vomiting (like bad acid reflux, especially in the mornings), flu-like symptoms, and intense nausea.
Last week, things became unbearable. I vomited multiple times a day and had such severe abdominal pain that I was crying on the floor. I contacted my GP, NHS 111, and gynaecology, and was told to stop the medication and wait for my consultant’s advice. Anti-sickness tablets didn’t help.
After reducing the dose, I then had severe diarrhoea for two days. My mood has also dropped massively — I feel depressed, cry constantly, and still have intermittent vomiting.
My consultant says these reactions are rare but can happen. The next option is the Mirena coil, but I don’t know much about it.
Has anyone else been intolerant to Provera?
Does the coil work well for hyperplasia?
Are the side effects easier than the tablets?
Does it help with nausea, vomiting, and acid reflux?
Is it better for work-life balance?
I also have endometriosis and want to preserve my fertility, which makes all of this even harder.
Any experiences or advice would mean a lot
She said " you won't need to come back to me to get the coil fitted in go to your gp" actually i will i will email her medical secretary today..
I have also this week and this first time proper developed all my endometriosis pain on my left area ( vag area TMI ) first time i have discharge after 3 months not sure if thats normal but pain and having to still be on these meds with the side affects just ridiculous.
Thank you again
Hi, I know I've responded to you post previously but thought I would add something.
As you may recall, I've had low grade EC and had the coil in now for over a year. Today I had the amazing news that there is now NO SIGN OF CANCER! This is the first time it's been that clear and I just thought I would pass it along to you, as I know you have hyperplasia without atypia. My condition is now just simple hyperplasia but I will be monitored for some time before I can have the coil removed. Still, it's great news and I trust that it might inspire you to continue with the coil and have hope that things can resolve. I know that my condition will need care and monitoring but my consultant is very pleased with this progress and has signed me off onto 6 month biopsies and then annual checks if the next test comes back the same. I hope that you are well and making progress.
Hi hun, omg!! I’m so sorry for the late reply. I’m honestly so happy for you and even happier that it’s cancer-free — you truly deserve that
Yes, I really want the coil, but everywhere I turn I’m stuck on a waiting list, which is honestly ridiculous. I went back to my consultant and she said no, then sexual health said I’m too complex and that my GP has to refer me to community gynaecology. My head is completely all over the place with it all.
I went back to work after 3 weeks off sick, trying to push myself to be better even though I’m still really unwell in the mornings. Unfortunately, my manager (I work in the NHS) has been very unsupportive — refused a phased return and wouldn’t do a risk assessment. I explained I’m not doing well but that I’m genuinely trying.
Long story short, because I hadn’t been there long and got my diagnosis a month after starting, it’s gone really badly. I’ve now been told I’m going to a Stage 1 sickness meeting and that I didn’t pass probation. I completely broke down — my mental health has just crashed.
I really just wanted to ask… how did you cope with everything? I feel like I’m not coping at all right now and could really use some advice
I am ready to leave the NHS I can not mentally continue
The only way I could cope in the dark days (still have them) is by taking every day at a time. A step at a time and not thinking too far ahead. Even now I am officially cancer free, I still have to be monitored and will have to live with the uncertainty for a long time into the future.
Deal with what is in front of you and nothing else, apart from necessary stuff obviously! Listen to music, watch old films or comedies. Take inspiration from others and lean on them if you need to. Personally, I only have my husband really and haven't told anyone else, not even my kids! Prepare for the worst by always, always hope for the best. You are stronger than you think....sending love.
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