Hyperplasia endometrial - Perimenopause

Hi Jai

Welcome to the Womb group.

I am sorry to hear that you have felt so unwell after taking provera for your hyperplasia. 

This link may help explain a bit more about hyperplasia and treatment.

Endometrial_hyperplasia_GHPI1709_03_22.pdf

Hyperplasia put simply is where the womb lining is thicker than they would like it to be and this can cause symptoms such as bleeding. Treatment for hyperplasia without atypia is often either the mirena coil or the provera. There can occasionally be other treatments. 

The mirena coil and provera both contain progesterone and it is used to hopefully thin the endometrium. Both treatments can have side effects but the advantage of the coil is that it acts locally on the area needed. So although there may be some initial effects with the coil, once these have settled down it may well suit you better. If it does not suit you then there is the option of it being removed. 

I hope that your symptoms settle very soon and that the coil is effective for you, if you decide to go ahead with it.

If it would help to talk to someone about it, please do give the Support Line a call.

Jane

Thank so much! My Gynologicist just told me the news ask my choices and spent 5 mins and said sorry and that was it . I have just being going online to get information because alot about menopause but not before so I was not sure . But your information helpful and that guide too . I really appreciate.

Hi, I've never been on Provera but I do have a coil fitted for over a year now. My experience is that over the first 3 months or so, there was regular bleeding, which is normal as the womb lining thins-out.

There was minimal pain and I even have regular biopsies to check the situation but even they go pretty smoothly and are taken whilst the coil is still in. My sense of smell did increase and I had hot flushes during the first 3-6 months but nothing that bad. Overall, it's worked and been well tolerated. My lining has gone from 14mm - down to under 4mm now and the condition almost reversed. Obviously everyone's experience is different and I can only speak for myself but I was told by my consultant that the coil is generally well-tolerated as it's only released in tiny amounts over time.

I sympathise with your situation but maybe it's time to try the coil to see how that works for you? It's easy to remove if you're not happy with it. Good luck!

Hi, I should have added that I had grade 1 stage 1 EC but after the last MRI and biopsy they said the endometrium had returned to normal...

Thank so much ,I am going to change to the coil. Unfortunately my GP can't do it ,i am trying to go through sexual health clinic if not Private. i feel like right now my moods are is so low and constantly emotionally.I haven't had period is almost 3  months since starting. I have developed acid reflux which I have never had .I understand the coil has some side affects but it seems far lesser . The smell part ,i was not expecting,i feel i can smell every thing from a mile away.

I hear you! I can smell everything and everyone, which is funny sometimes. I have been fortunate with the coil and I hope you that have a good experience. Everyone is different. My consultant is very pleased with my progress so far and whilst she is 'guarded' about my having it removed at some point, she is open to the possibility, on the understanding that I lose more weight and have ongoing monitoring.

Best wishes to you - and I hope things will improve soon!

Thank so much i wanted to ask another question,i was wondering if you could  use manjaro for weight loss while having the coil? 

I'm not surprised you are feeling down - those symptoms would depress anyone. 

I had a similar diagnosis but also had a large polyp removed that turned out to contain some cells with a potential to turn cancerous. Some people do take a while to adjust to the coil so as I was going on holiday I took tablets first and had a coil fitted a month ago. I''ve never had much sense of smell and sadly I still havent. I take tablets for nighttime reflux but oddly since the polyp was removed mine has improved and I'm considering stopping the tablets. So no, no similar side effects. 

The dose of progesterone from the coil is very much lower than tablets so less likely to cause side effects for you.  It can also be removed if it causing problems although they probably will want you to give it some time and see if you adjust.  However it does have a contraceptive effect so you need to discuss that with your doctors. If you are ever looking to get pregnant then you need to consider doing so now. I had a child at 40 and their teenage years were really hard!

I dont know about weight loss drugs while on the coil but google suggest that some women have period like bleeding when using it. Most people who use it seem to regain weight is they stop but you can continue on a lower maintenance dose and then they keep the weight off. Losing weight does help get your hormones in a better balance. 

I'll be having hysteroscopies at 6 and 12 months and if the lining has thinned down they'll stop and maybe I'll get the coil removed. Havent had much in the way of blood loss so I'm a bit concerned it may not be enough. 

Thank you so much for all your messages — they’ve honestly really helped and made me feel less alone.

I just wanted to explain my situation a bit more and hopefully get some advice. I’m now trying to get the Mirena coil fitted as soon as possible so I can come off Provera, but this has been incredibly challenging.

My care is currently under Leicester, even though I moved to Solihull last April. During my consultant appointment (which lasted about 5 minutes), I was told I could either have the pill or the coil. I didn’t really understand the differences at the time, so I said the pill. I really wish I had known more back then.

Now that I’m trying to get the coil fitted, my consultant won’t do it. My GP has told me the waiting list is 6–9 months and Leicester hospital can't even get a urgent referral and advised me to contact the sexual health clinic. When I did, they called me back to say that because of my endometriosis and hyperplasia, I’ve been classed as a complex case, and they can’t do it there. They said my GP needs to refer me to the Community Gynaecology Service.

I asked about going private, and they said I could try, but even then I might be turned away.

I feel completely dumbfounded and honestly quite upset — it feels like I’m being passed from place to place, with no one willing to help or expedite things, despite how unwell I’ve been on this medication.

I have another GP appointment on Monday, and any advice on what to say or ask for would be really appreciated.

Frankly, if my consultant refused to fit a coil for no good reason I would change them! You can always for a second opinion or change your consultant or hospital where they include you in your treatment plan. It's your body after all!