Debunking surgery

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Hi I’ve started a new thread but I think this might be raised somewhere else 

I’ve got endometrial cancer and have had a total hysterectomy however it has spread to my peritoneum and omentum 

I’ve had 6x chemo which worked well but sadly it’s returned quickly so am now trying immunotherapy 

the one thing that hasn’t been considered ( as far as I’m aware ) is debulking surgery 

im determined to fight and I’m not ready to give up but also realistic and certainly want to do anything that will prolong my life and or improve the quality 

atm my abdominal distension and pain is really compromising my life 

has anyone else had expirience of this surgery or been through it 

I’d be grateful for any knowledge that might help inform my questions to my consultant 

  • Holding you in my thoughts. 

  • I hope that the drain will really help. And I hope that the surgeon will consider the surgery to relieve some of these horrible symptoms. Let us know how today goes

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi  at least 6litre drained so feeling much better 

    still sitting in a hospital bed with 20mins to go before drain removed if anyone is having their first drain please don’t worry the procedure is virtually pain free 

    now I just have to see how long before it needs doing again and pray the immunotherapy slows it down enough not to be too frequent 

  • Am glad they have been able to drain a significant amount and you are feeling so much better. 

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Bless you so pleased to hear this. And yes praying for effective immunotherapy for you.   I have a consultant appointment tomorrow for my next steps.  Praying for good news 

  • Good luck and do let me know as soon as you can 

    I’m praying for you Pray 

    I’m home feeling so much better and can’t wait to go to bed and get a good nights sleep 

    I’m not going think past a good nights sleep 

  • So spread is in liver and stomach and neak lymph nodes all very shocking.  Further biopsy on neak before decions are made I am certain now  I don't have long and am terrified at the prospect.  I got the all clear in June so this is devastating for me and my family.  Just in pieces right now

  • Oh I’m so so sorry it’s devastating you work so hard to put it behind you and then bang like a shotgun you’re told  it’s back 

    I don’t know how long I have but it’s not sounding good the speed it’s growing 

    I wish I could think of words that would help but I don’t believe there are any 

    I try so hard to live from day to day and not think further than tomorrow’s plans but it’s almost impossible to keep it going 

    are you in touch with a psychologist they say they’ve really helpful for the whole family 

    I’m pathetically looking for a life line and think I’m failing but keep in touch I’m here and think I will need to learn from you how to cope with this senario 

    lots of love and thinking of you 

    xxxx