Just feeling super scared about it all

Hi Sparky

I am sorry that you have got such a lot going on at the moment but you are doing the right thing in getting thoroughly checked.

I am sorry to hear about your dog, it is always hard when you lose a pet after such a long time. 

I had a similar thing with my periods getting progressively heavier, with clots and was put on the mini pill that effectively stopped my periods. I later had a heavy bleed and a month later I was having surgery.

I had my biopsy done in out patients but they did not use the camera as she said there was too much blood to see anything much. I was told I could take paracetamol before hand and I did so. Most of it was ok and the thought was worse that it actually was. The painful part for me was when they pushed through my cervix but I counted to 10 in my head and that bit was done. The rest of the procedure felt a bit like period cramps. I found it tolerable. The biopsy did not involve any cutting- it was straw like suction. 

Some ladies have it done under general anaesthetic others may be offered gas and air. If you are finding it too painful, you are in control and can ask them to stop at any point. I spoke in detail with the nurse who did my procedure before it happened and this helped me. 

The hyperplasia can be caused by other things rather than cancer- eg adenomyosis, but it is important to rule it out, especially given a family history and the bleeding. 

You say you have been feeling run down and had a chest infection, I wonder if it could be due to the amount you have been bleeding and the loss of your beloved dog. It could just be a chest infection and I know many people at the moment who have had one that has lingered. 

I am not sure about the endometrial tissue that you have passed and whether this is an indication of anything. You could give the Support Line a call tomorrow (8am-8pm) and speak to one of the nurses about it.

I hope that you do not have to wait too long to get the hysteroscopy out of the way. In the meantime we are here if you need us.

Jane

Thank you Jane, that is reassuring. I don't really want to ask for a GA for a hysteroscopy as I am hopeful it will be fine and I've always been fine with smears, exams, etc. I also just want to get it done and a GA request would delay that. I might tell the nurse I am nervous before and see what pain relief might be available if I need it - if there is any! I guess people only write about bad experiences more so those that found it find don't bother to report that so much.

Yes I do think the bleeding made me feel run down. It went on for 6 weeks total and there was no let up until I was given the medication. I was staring to feel light-headed when I stood up. The chest infection did indeed originate from a winter cold that I just couldn't kick. I am still coughing now but desperate to get it gone before I have full surgery. I've had two rounds of antibiotics for it, which helped, but it is still lingering. I think it's just when everything comes at once it makes you feel like it might all be connected somehow.

I think the 47mm part is just making me worry. I can't find anything on the internet that references that degree of thickness expect anything over 20mm is 'highly suggestive of malignancy'. Anyway hysteroscopy on Friday (what a lovely way to spend Valentines Day!) and than the wait for results. In the meantime I think they are going to schedule the hysterectomy as my consultant is adamant I need it whatever the outcome and to be honest I am fine with that, given my age and family history.

Hi Sparky55

You really have been having a tough time , the waiting for a diagnosis is horrible and you have had lots of other things going on as well. If it helps I had a hysteroscopy without an anaesthetic and it was fine for me. I have severe vaginal atrophy and find any form of internal examination very painful. When I got to my appointment with consultant the procedure was explained and I was given the option of an anaesthetic at a later date. I had been having terrible bleeding and had passed 4 fibroids and been in a and e twice and just wanted a diagnosis so I decided to proceed with the option of stopping at any point. For me the procedure was ok surprisingly! I realise reading everyone’s stories I was lucky but I didn’t need painkillers and the bleeding and pain was manageable.  I hope this helps a bit and I hope Friday goes well for you. Please feel free to ask me anything.        

Linda xxx

Everything  is gonna be ok, try to get busy till friday. Ive been on tranexamic but it didn't helped at all. My hysteroscopy its on 13feb...so we gonna wait biopsy result at the sametime.  

Firger crossed for both. 

I was really worried before the biopsy but to be honest it was all bearable. More uncomfortable- like period pain. The only bit I found painful was when the instrument pushed through my cervix but it was over in seconds thanks to a very skilled nurse. It was like a strong pushing sensation in an area where you don't normally feel one. 

I was lucky in that I had 2 very supportive nurses with me and them telling me what was happening and when did help. It wasn't a pleasant experience but it was one I could cope with. They should be able to offer you gas and air if you feel it would help- but I wanted to feel in control. 

From what I remember the whole appointment took around an hour and that included medical history before hand and talking after. I also had to rest in the recovery room afterwards for a while to make sure any bleeding had settled. I had a friend with me and would suggest that you do if possible as afterwards I felt quite light headed and wobbly. I had to rest the rest of the day and felt a bit washed out for the following day. Bleeding stopped within 24 hours. 

Thank you for all your reassuring stories. CoriP -sorry to hear the tranexamic hasn't helped you. I'm off that now and just on northiestrone which has helped massively. Keep us posted on your hysteroscopy and results - yes, we will probably get those around the same time fingers crossed.

So I've contacted my consultant's secretary about possible pain relief and been told there will be nothing except some 'numbing cream' if I need it. No gas and air. I am getting super stressed about this as I found the TVS painful. I keep crying every time I think about the procedure. I am worried that I am going to be so anxious it will be hard for them to do their job. I'm trying to find out if I can re-book for a GA but they are avoiding the questions currently. Why is there so little pain relief offered? For colonoscopy you get sedation. It just seems so odd.

Sparky: You don't to have a GA if you ask for pain relief. There is local anaesthetic, plus gas & air but you need to ask for it. Most hospitals provide these options. I always have local jab (only lasts seconds) and gas & air and it helps a lot. Good luck with what you choose.

Sorry, just read your other response where they said there would be nothing apart from numbing cream, which is unacceptable. You could always talk to your GP and explain. They might just arrange for it at another hospital where they do offer pain relief. GA is OK but local pain relief is quicker with fewer potential risks.

Hi LolaBear, Thanks - that's just it though. She said no to gas and air, no to any other kind of local anaesthetic and only numbing cream was available - but I've not heard of anyone else having cream - only a local injection in the cervix - which it seems is also not available to me. So I am starting to realise there is no pain relief offered at my hospital at all.