Hi all
I feeling disappointed as I was expecting to receive my results from the MDT on Monday passed as at my consultation where I was told I had cancer, I was given the impression that I would definitely be told this Monday of the secondary testing and plan.
However the didn't happen due to my CT scan results not being available/sent for my case to be discussed.
I understand the need to have everything to review together. I'm angry with myself for fixing the date in my head that this would be it and a little disappointed that I was led to believe this might be the case too.
However hopefully this Monday morning my case will be reviewed and I should hear on Monday afternoon.
I feel like I'm living two different lives at the moment and I find it hard to try and not let the waiting or the diagnosis to be the only focus.
I'm feeling lonely in this at times althrough I have amazing family and friends supporting me. I fill guilty that I feel alone. Anyone else feel/experience this.
Also I've found it hard that when people find out they start to cry and I've not cried about it yet. Again makes me feel guilty and selfish to even question this. Has anyone experienced this too.
Xx
Hi Su…sorry to hear your news.
its really hard at this stage, I was expecting to hear results on a particular Friday following MRI and X-ray, and was building myself up to that date, even trying to “find a friend” who could come with me to appt, and then they sprung it on me that they wanted a PET scan doing and this would put things back. I could so easily have had the PET scan on a date proposed which would have given no chance in getting the results back in time for the delayed appointment. It was just by chance I happened to ask the question and managed to go to different hospital for the scan.
at that time I learnt about not having control over things, which as a planner doesn’t come easy. Hopefully Monday comes around for you soon and you will know where you stand.
Re your comments about being alone, I can also relate to that, I found Christmas very difficult, and said to a friend, I was in a house of people but felt alone. I live on my own, and was quite relieved to get back home to my cat! Everyone deals with this in different ways, and you shouldn’t feel guilty you are just going on a different and new journey and finding your way.
my worse time was definitely waiting for the results, and once I had a plan, even though a long journey, I was in a better place.
good luck for Monday
Hi. Thank you for sharing your experience.
I'm sorry you found it hard over Christmas and totally understand wanting to be back home. Cats are such a comfort. We have 3.
How are you doing today?
I've just had a call from my consultant this morning to ask me to go in to have another biopsy which as been requested by the consultant at the cancer centre for further testing. So I don't think I'm going yo be getting any results on Monday now.
Your so right about control. Its so hard when it's our bodies yet we're waiting on others to make decisions about it. I'm also someone who doesn't like suprises at the best of times.
I do want to know so I'll be - right this is what it is and this is what needs to be done and we can get on with it.
Thank you for your encouraging words. It's definitely a road I didn't see myself walking down at 46 years old. But then one does.
Just waiting for new appointment now.
Xx
I’m doing good today thanks. Just back from my 7th radio appt, and weekly review. Got there early … traffic behaving itself today, and I was zapped and reviewed and out before my appt time…sun is shining, minimal side effects so far, and told with luck the next week should be easier until I have next chemo on 19th. Xx
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