Do I have/ need radiotherapy after surgery for grade 1 stage 1A endometrial cancer

Any Googling at all is too much and inadvisable. Dr Google should be struck off as he/she/they often dispense out of date, out of context or even totally inaccurate/false info. I appreciate that the waiting is hard, but try and focus on what is known now, today, rather than what might be in the future. For many women, their grade and stage stays the same post histology, and if yours stays grade 1 stage 1a you may well not be offered any adjuvant treatment and just moved to patient-led follow up. Some of us (I believe this to be a minority) are restaged post histology - I was one of those. I was restaged to a technical stage 2 and was offered radio and brachy as an insurance policy. It was explained to me why radio and brachy would be a good idea and I was then told I’d have an appointment with an oncologist so that I could ask questions and decide if I wanted the treatment. That happened a week or so later. I did go ahead with it (started about 6 weeks later) and have never regretted it. 

Thank you 

Hi i hope you get your results soon; my final staging for the womb was stage 1b grade 1. I had three sessions of Brachytherapy. My centre is clear that the rule on no repeat radiotherapy is much more nuanced now; there are exceptions dependant on dose, area, and length of time between etc. Sounds like you have got your questions ready for your consultant when the results come in - hopefully you wont need them, but its good to have them ready.

Thank you. Just trying to understand what options there are if any 

The thing is though Liverpoollou, until you’ve had your results, you won’t know whether you’re even going to be offered adjuvant treatment - so therefore don’t need to think about it yet and are risking worrying for nothing. Everyone I’ve known who stayed grade 1 stage 1a post histology wasn’t offered adjuvant treatment. In the unlikely event that your stage goes up, that would be because something else was found which was more sinister and I’d imagine that you may then feel differently. If you put this thinking on hold, and wait till you hear, you can then ask questions if necessary - and it may not even be necessary as you may stay the same. For me, when I got my results and found out that not only were there a few cancer cells on top of my cervix, but also extremely rare pre-cancerous “stics” in my fallopian tubes, I wanted to do all I could to make sure any stray cells were mopped up and zapped and that helped me decide. My oncologist was fabulous and knowledgeable and I trusted her, and that also helped. 

Thank you. Marmite.  Im a born worrier and a pessimist deep down unfortunately.  But this is very good advice. I will try and follow it.

So grateful for all the responses I have had. It is comforting to hear from others who have gone through or are going through this. Family and friends are great but being able to chat with those who understand the worries and concerns first hand is so helpful 

• Hello Liverpoollou - I am 8 weeks wpo vaginal hysterectomy. I have had my surgery follow up via telephone 3 days ago . My final results were stage 1A grade 1A so no further treatment. Is telephone I will have the histology sent to me only because I asked . I feel very lost and alone , and I have been in tears for most of the last 3 days . I don’t have Lynch  but I do have a genetic fault . I realise I am having a reaction that I didn’t have before but I don’t when this crying will stop . 
  My advice is to make a list of the questions you have . I struggled because I didn’t know the process and no-one gives you a list of what to expect and I only found out from the facebook processes . Re any further treatment don’t make any decisions until a professional has gone through the options with you and  if possible get someone to come with you 
  I am terrified of no further treatment and being expected to identify problems myself.

Hi Aoife

Please do not feel alone. I remember feeling quite weepy after my treatment finished. During diagnosis and treatment everything can happen really quickly and there isn't much time to think. Once treatment is over I found it was time for the processing to start. Do give the Support Line a call and talk things through.

Macmillan can arrange some counselling through BUPA if you feel it may help. 

Jane

Thank you Jane .

Hi, I was stage 1A, type 1 and had no further treatment after my hysterectomy in June.