So a week since my post CT appointment where I was told everything looked good. I rang hospital today as I have had a bit of pain in my groin again and was told I have to be seen next week in clinic as at that last appointment my tumour marker had gone from 16 o 29. I have already been told that chemo won't be an option as they had given me all they could, surgery was mentioned but I suppose that will depend where it is. I know there was a little bit of tumour still left in my groin. I am now really really scared and devastated. A whole week to wait until clinic and I know last time this thing grew very fast. It is the not knowing what will happen to me. I could resign myself to dying but it is what I have to go through to get to that point that is cutting me up. Well I had a few days of hoping things were working out well, now back down in the dumps again.
Hi
Saw Consultant today. She is disappointed that the cancer looks as though it is active again but not surprised as it is an aggressive one. Just had another blood test today to see how much tumour marker has gone up. As I am fairly well at the moment I will be seen every couple of week then at some point I will have another scan then either surgery, once a week chemo or radiotherapy but this is aimed at keeping me going and pain control. Prognosis is months rather than years which is what I had prepared myself for. Still a little numb and that must be my brain protecting me from having a meltdown. I expect I should join a different forum now with others in the same boat. Nothing to be done but just somehow come to terms with this and hope I can be comfortable for a long time into the future.
JG
Jkg
Hi Jkg
I am so sorry to hear that the cancer is active again. I was really hoping for better news for you.
I am glad that you are fairly well at the moment and are going to be seen regularly.
I hope that the treatment, whether surgery, chemo or radiotherapy can be started quickly and that you respond well to it.
We are here to support you.
Jane
Hello Jkg
You are brave to post your news and to open your heart. I am sorry you have received this news. I agree I think the brain does cushion us from shock and protect us.
It looks like there are different treatment options and you can discuss these, be closely monitored, cared for and protected.
I am sending you love and strength.
Kim xx
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