Just had the call to arrange the appointment and I think my body has released the tension I've been holding trying not to think about this. I feel really shaky and tearful. I don't know how I am getting there as yet as I don't want to ask anyone for a lift as I need to go alone
I had read this thread last week in preparation, it is very informative
Am glad that you have had your results. I was 1b, grade 3 too.
I had chemo but also had radiotherapy. There are lots of ladies on here who have had radiotherapy so please do ask if you have any worries about it.
It took me a while to process having the further treatment after I was told but once it had sunk in and I knew what to expect- I was just keen to get on with what was planned and then have time to recover from the whole experience. I hope you are doing ok after the hysterectomy
It is tough and there is no way of getting around it really- all I can say is that it wasn't as bad as I feared, I was well looked after and once started you sort of get into a routine and the time does pass. I remember at the beginning thinking there is no way I would cope with 25 sessions- but somehow you do.
Have they told you which type of radiotherapy you will need? Some ladies seem to only have some brachytherapy- which seems to be 3 sessions- but it seems that the grade 3's seem to be offered external beam radiotherapy.
With the bleeding- it's always worth mentioning it to your CNS. Have you been moving around a lot- doing more? The other thing that although did not happen to me, but I have seen it mentioned is sometimes it can be due to any stitches dissolving.
Jane
I was daunted by the thought of having to go every weekday and it did dominate my life for that time. I had decided in advance that I would like my sessions to be afternoon so that I could still walk my dog in the morning, have time to have a poo, and then be able to drive without rushing to the hospital (45-60 mins away). So I requested that at my first oncologist appointment and she made a note for the radiology staff. So I felt I had a bit of control being able to have a say in that. I also asked at that appointment if they insisted on routine enemas before treatment and she said no. Some do some don’t, but having that info also help me to feel a bit more equipped. In situations where I can’t have control I find having information helps. I did find that once the first week was over, the time went more quickly than I imagined. All the best with your decision,
Another lady on here requested her radio appointments for the morning so that she could then go back home and go to work (she ran choirs in the afternoon and evenings - and worked throughout her treatment)
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