Pathology report times

Hi robot, my hospital had the foresight to book me in for results just under two weeks post op, so that’s when I got mine. My MTD met on a Friday morning and my results appointment was on a Friday just after that morning’s MTD. Do you know on which day of the week your MTD meets? Is it your CNS that you’ve called?

Hi Robotxxx

I had my hysterectomy on 25th July and had to wait 4 weeks for the results, this gives time to investigate your womb, etc to know what the best treatment for you is or if you need treatment.

 I was told ordinarily I would not have to have further treatment but a gene P53 found in lymph nodes was mutant and I need chemotherapy.  It’s challenging because I don’t have cancer.

 I completely understand your anxiety, I suffer with depression but the ladies here and the Macmillan helpline are wonderful and can give you help with trying to control your anxiety.

Linda

They did tell me when they met but I can't remember. Yes I called my CNS nurse, I only have the MacMillan number and so had to leave her a message. I'm starting to really worry, I didn't have anything done to my lymph nodes so now I'm also worried that they might have missed something They said they didn't need to do the lymph nodes but it seems several women on here only got diagnosed because of that.

1. I had my surgery on the 15 March and they did a flash test during surgery on one of my lymph nodes that was enlarged and cancer cells were detected. They had removed 19 in all. I was already booked to see the surgeon for post operative appointment on 5 April and was told further treatment would be recommended due to the one lymph node, though the others all had tested negative. I saw the oncologist on 19th April and by then all the results were back re staging etc. So yes about 4 weeks all in. 

They would only take the lymph nodes to test, I had 12 removed but the rogue gene was in all of them.  It’s not directly related to the cancer but could cause it to come back in the future.

If your CNS can’t answer your questions then they can ask the consultant and get back to you.  
Try not to worry too much as you will drive yourself insane having to wait for the results.

 I didn’t have a meeting with the doctors I was told in a phone call, it felt very uncomfortable to me.

Please call the Macmillan helpline for additional assistance x

Hi Robotxxx

I am glad that you are recovering ok from your surgery. A few aches and pains is normal and I also had a bit of soreness around a couple of the incisions- but this improved greatly once the excess glue had dissolved. Before that it was pulling a bit. 

My post op pathology came back 3 1/2 weeks after surgery but that was with a lot of chasing from me. A lot depends on the hospital and how busy they are. It can also depend on what day they come back and go to the MDT meeting. In the end after several calls and emails to the consultant's secretary- the consultant himself called me. If I hadn't chased it up it would likely have been a few more days until after the weekly MDT. I was lucky in that he told me what he had found and recommended the follow up treatment before it had been fully discussed at the MDT. However it was clear from the results, what I would need. 

I was told by phone but have always had the option to go in for an appointment but preferred the phone call. 

I hope you do not have to wait too much longer. You are not being unreasonable- it is a worrying time and we all want to know as soon as we can. 

Jane

I just got off the phone with the cns who told me that the results were good and confirmed the initial diagnosis, stage 1 grade 1 endometrial cancer and no need for further treatment other than 3 monthly check ups for a while. I feel so lucky. Thank you all so much for your status and support!

That’s fabulous news robot! 
(FWIW they don’t usually test lymph nodes for predicted grade 1 stage 1.)

That's great news- what a relief

Fantastic news, so happy for you