Hi all, Monday of last week I had a laparoscopic hysterectomy. So far, so good. Yesterday I got a call from the Macmillan nurse at the hospital advising me that the results of testing my bits and pieces were in. Apparently the cancer wasn't as superficial as was first thought and I now have to undergo a few sessions of radiotherapy. The cancer is grade 1b hence the radiotherapy. Still early but a bit of a worry nonetheless. I just wanted to ask if anyone else here has had the same thing happen to them. If so, how was it? Did the radiotherapy do the trick? Once I've had the radiotherapy I'll have a follow up in six months. Which would clash a bit with my holiday to Australia in October. It will be internal radiotherapy. Your thoughts would be much appreciated. Thanks x
Hi Blenkinsop
I too had a full robotic hysterectomy last Monay , was out Tuesday, had no one contact me if results are ok and it seems like I'm on my own, I have no pain except constipation pains lol, no bleeding, wounds seem OK, just a bit sore from injections twice a day but other than that I feel OK, just I feel a bit low mood for some reason, maybe its the waiting till 12th for my appointment for results and if I need furher treatment , I was diagnosed with stage I grade 2 endometrial cancer, but it seemed like it hadn't spread out, keeping fingers crossed,
I just worry about further treatment eg radiotherapy, as I dont know nuchal about the treatment
Get better soon x
Hello Blenkinsop,
Hope that you are recovering ok from your laparoscopic hysterectomy. It is good that you have your results even though they were not as you expected. I can understand that you feel anxious regarding radiotherapy and will have lots of questions about it.
I had 25 sessions of external beam radiotherapy for stage 1b. This followed chemotherapy. It was a difficult time but am now out the other side and am doing ok. I have check ups every 3 months. The ladies on here were a great source of support.
At the top of the Diagnosis and Treatment section in this group there is a specific Radiotherapy section that you may feel you want to have a look at to see other people's experiences, I also found my CNS and the radiotherapists really supportive.
Hope that your recovery continues to go well
Jane
Hi Blenkinsop, internal radio is actually called brachytherapy and many of us have had this so rest assured there will be plenty of input. There’s a dedicated radiotherapy and brachytherapy thread which you could read through here Radiotherapy Support Thread (inc. Brachytherapy)
Or you could also change the title of this thread of yours to Brachytherapy or start a new one to ask about people’s experiences of brachy, or do a search on the group for previous brachy threads
Hi Scorpiolady, well done for having had your op. It’s understandable to be feeling a bit anxious/low - how about giving your CNS a call (usually office hours Monday-Friday) or the Macmillan helpline (8am-8pm 7 days a week)? It would be a bit early yet for your results, especially as they’d need to not only be back from the lab but also to have first gone to an MDT meeting. Mine were back in two weeks but that was last year when things weren’t quite as busy. Are you managing to get out and about for gentle walks?
Whatever cancer throws your way, we’re right there with you.
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