How does anyone cope with the 2 week wait?!

Hi Green 3322 welcome to the forum and I am sorry to hear how you are feeling, its not an easy time. Helping others when you are not in the right head space is difficult and Im wondering if you can take some timeout just now either with annual leave or with sickness? That may be wearing you down more then you need to be at this point  in time

Thats what families are for and I feel sure that if you did speak to hubby about how you are feeling he may have some ideas, maybe for time away or days out that could distract you from focusing on this and also would your children want to be there for you, I think that they would.   

I dont think we do actually cope, we bear it and endure instead and its not easy.

Would it be of any help to chat to one of the Advisors at MacMillan that you will never see meet in person as sometimes that can help just to get that out to someone. They are great and are contactable on 08088080000.  Think about it?

We will be thinking of you so you are not alone, even if it feels like that. xxx

Hello Green3322

Waiting is the worst part and you will find that with this situation even me now I find it difficult waiting for scan results this time particularly as had a scan 13th October and wasn't seeing Consultant for results till 3rd November that's nearly 3weeks! I found it quite difficult but kept myself busy and the time did pass. 

Try to focus on now and tell your self that it is what it is and by worrying it's not going to change anything. This forum is a good place to ask questions or just chat about your concerns and you've already a step in right direction by joining us. It's helped me immensely and I cannot say that enough. Please keep in touch and let's support each other we are here for you. Please read my bio for my journey if it helps! It's not always doom and gloom X

Hi Green3322. Honestly U think it is perfectly normal to keep dwelling on things when waiting for more information, even though you also don't want to think about. I am a chronic overthinker and my emotions and thoughts were all over the place from minute to minute. You sound like a very caring person doing the job you do and are probably used to looking after your family and friend and wanting to protect them but imagine if the roles were reversed? I'm sure they would be upset that you had not shared your anxieties with them but totally understand how difficult that can be. I tried to "be strong" and upbeat in front of my daughter and friends but inside (and especially in the middle of the night) was a mess of terrifying "what ifs?". I did email my Macmillan nurse (I knew if I said the things out loud I would just breakdown - which is ok by the way) and she was great at reassuring me that fear is perfectly normal. She also directed me to some counselling services, which I didn't use but may take that up as now, post-surgery for 4 days, I am finding my brain does seem to be imagining all sorts of things, although physically I feel remarkably ok. I am trying to relax as obviously I'm not able to distract myself with physical activity (before surgery I must have cleaned everything in my house more than they had ever been cleaned!) but it is hard to stop things popping into your head - what if I'm not injecting my blood thinners correctly and get a DVT? what if the cancer has spread? why do I feel so tired today when I felt really good yesterday? and so on, and so on. Luckily my daughter is very patient with me but I'm beginning to get on my own nerves so know I need to watch it doesn't become all-consuming. Posting on here was wonderful - even just writing the  first post helped get some of the thoughts out of my head - and the very kind responses from women having gone through (or still going through) similar things were so lovely. I said in that post that it is often easier to post anonymously or talk to strangers  as you can often be more open about your deepest fears when you don't have that feeling of wanting to protect your loved ones and not worry them. What advice would you give the people you support? Try to put some of that into practice, but above all, be kind to yourself.

I’m exactly the same, had an MRI and my MDT meeting is Wednesday . I’m absolutely petrified and normally a strong person. I’m not ashamed to say I’m struggling but the dr has given me diazepam and tt has helped in the short term but I physically shake when I think about what my diagnosis might be. I want to see my daughter on her wedding day and I’m on 37

Hi GREEN3322 I took great comfort in listening to the Headspace meditation guides on a daily basis and I still do it every day (also their soundscapes are incredibly comforting to me and I use them to sleep). There is one course on there that's called 'Coping with Cancer' and it was very helpful to me. The course leader has had cancer himself and it is very balanced and helped me to put some things into perspective when I was at my worst. You have to make sure you do it every day and it takes some practice. I think there is usually a free trial.

https://www.headspace.com/articles/coping-with-cancer

Hey Liverpool1, how did you get on today with your results?

I received a stage 1a grade 1 diagnosis and hasn’t spread. I have to have a hysterectomy and pre op tomorrow. They have said for me to decide if I want my ovaries removed or not as there are risks to early menopause as I’m only 37 as well as re-occurrence in my ovaries. The best news I could have hoped for and looking forward to this all being over I hope. Thank you for checking in xx 

That’s great news to have that as a predicted grade/stage, Thinking of you as you make your decision - Cakenport. 
didn’t have her ovaries removed and may be happy to share her story.

well done Mrs,

I bet that's a relief as it's so hard keeping your head in the right place, I am the same early stage 1 grade 1 I think as I keep asking about the grade and stage and all they say is caught in the early stage and hopefully within the polyp, but I no that the cancer cells don't usually develop within polyps and that once they take my lovely jelly baby Frankie the polyp away they will find some near were Frankie the polyp once was Frankie will be replaced with a hormonel coil for three months as they say the coil slows down cancer growth.

That 3 months helps my tired painful 59 year old body get ready  for such a intrusive operation whilst I loose weight too.

To be honest my fears will not magically go away or die down even though Frankie the jelly baby polyp will be eradicated and that bloody coil put in Frankie the polyp's place my true mindset is that I cannot wait until the day every last bit of my reproductive system womb, ovarie's and tubes are taken away and put in the incinerator and we can got in with. Our lives no more worry, no more upset and confusion and for me to be me again.

So Liverpool 1 you say they are giving you the choice to maintain your ovarie's so that they will help to prevent early menopause, do you have children !!!! If not I no you won't have your womb but some one might be able to carry your eggs and have your own genetic child but if that is possible or just not the case have you discussed what will be the probability of the cancer developing within your ovaries at a later stage or just removing your ovaries at a later stage to give you ease of mind that cancer's ugly head will never rise and darken your door ever again regarding that area of your body  again.

I have researched this silent assassin and it seems that 99.9% of women tend to completely get full removel of womb, tubes and ovarie's and if unfortunately cancer has spread further towards the cervix that also gets removed, perhaps talk to your cancer nurse specialist and also your consultant. Remember to do your own research and keep to the facts and the truth how you as the person with the cancer feels.

As you no Liverpool 1 I had mentioned that I am an old Scots women  and 59 we have our daughter who's 25 now and ready to fly the coup  as she's going down to Southampton to live with her boyfriend / partner to be  like you she had a scary time but got the all clear after major surgery to remove a 15cm cyst and her left ovarie and tube as there main aim reserve fertility as she has no children yet but if they had found cancer she would have had a radical  hysterectomy.

Keep in touch and let's us no how you manage before and after surgery all the best for you on this rocky road soon to be striaten out.

King Regards 

WILLIAMINA (old Scottish bird lol

Thank you so much, I have 1 daughter who is 15 and no plans to have anymore children. I think for my mental health and worries for the future the removal of my ovaries is what I want but I’m scared if I need hormone replacement therapy as they said they don’t really like to give HRT to people who have had Womb cancer as it’s a hormone related cancer. 
my husband lost his first wife to breast cancer and to say it’s been tough on the family is an understatement. He had 2 children who were 8 and 5 at the time. They have been with me 18 years now so they are extremely worried and of course fearful. 
I don’t want to have to go through this ever again, they say I have PSOC on my ovaries anyway so they don’t work properly. My consultant keeps telling me to get them removed and of course my husband is saying don’t leave any trace of anything if you have the option to remove and my parents are saying to keep them in and have them removed at an older age. It’s so hard.