Pre diagnosis pain and shivering at night

Hi Carol nad and a warm welcome to the Online Community. Here you'll find a lovely group of supportive ladies who have all been exactly where you find yourself now. Any possibility of cancer diagnosis brings all sorts of stress and fears and if anyone can hold your hand and reassure you, we will as you’re not alone in this. Between us we’ve accumulated lots of knowledge which we’re all happy to share

I think that you're experiencing anxiety and probably a mild form of shock. I didn't actually have any womb pain, just a slight pink spotting years after I'd had my menopause. Is that a typo in your second to last sentence? Don't understand it!

It’s always helpful to others if you write a little something (or a lot) about yourself and how you came to find yourself here. Why not take a few moments to update your profile. It's always helpful for us to read if we want to ask you questions and you also won't end up repeating yourself. You can enter it into your profile (click on your username and select “Profile”). You can amend or update it at any time. If you’re not sure what to write, just click on my username.

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it really informative and helpful.

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful for when you have surgery.

You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.

There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.

Sending you welcoming hugs, Barb xx 

Hi Carol 

Endometrial cancer typically has very few symptoms and it could even (and often does) go unnoticed. All I had was very slight pale pink spotting when I wiped after having a wee, and that was it. I didn’t feel unwell at all during diagnosis, operation or treatment, and got a bit sick of people saying “oh but you look so well!” 

So either something else is going on, eg an infection, or it’s anxiety related like MrsBJH said. Hope the CT goes ok, and that you get the results soon. In the meantime you could call the Macmillan phone helpline for support which is open 8am-8pm 7 days a week. 

Hi Carol,

I had pain, bleeding and nausea when I was referred by GP. I didn't have many investigations pre op and the surgery happened quite quickly. 

I know that some hospitals have delays reporting CTs at the minute, therefore I would ring your Consultants secretary and make sure they know about your pain as your report may be given priority. Take care and best wishes,

A x

Thanks for you reply. I now have a diagnosis stage 1b grade 3 and have been in touch with the lively macmillan line. Pre op on Monday but am in a lot of pain x

Hi Carol, I’m glad you have your pre op date and hopefully your surgery date will follow soon. We have a few grade 3 ladies on here and I’m sure Robin27 and Madesp and others will be along to encourage you. 

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Hi Carol

Do you have a date for your hysterectomy yet or just the pre op? I was diagnosed 1A serous grade 3 earlier this year. I have recently finished my treatment plan and have my 2nd Gynae check up appointment this week. 

It won't be long now Carol bless you and you too will be on the road to recovery. There are lots of ladies on this site that have had the same diagnosis as us and years later they are doing well, so there's no reason why we won't be like them too. 

Have you been given anything for the pain?

MarmiteFan did a really good hysterectomy blog of her experience and I found it so helpful even though my operation was robotic surgery,  unfortunately i couldnt find it to send the link, but you could ask her to send you the link if you want it.

 I'm not the best at sending links I hope the one below works for you  on tips for what to pack for your hospital stay, hope it helps. 

community.macmillan.org.uk/.../1790448

Wishing you the very best for  you're op and that you are out of pain very soon. Please feel free to ask us anything, we are all  here for you.

Hugs Robin x

Here’s a link to the diary thread I did when I had my hysterectomy:

 community.macmillan.org.uk/.../hysterectomy-day-and-after---diary

Hi robin Oh thank you for your reply, I had a week with no pain which was bliss but now its back and have been taking paracetamol but I also have codeine which I am scared to take but have done recently as pain so bad. Just to put the tin hat on it I think I now have a UTI! 

No date for op yet.  pre op tomorrow. Operation Can't come quick enough!

Thank you. I too am a marmite fan!