Micro metastasis in Omentum

Hi Angelafish and a warm welcome to our spot in the Online Community. We've a lovely group of supportive ladies who hopefully can answer your questions.

I hope you're recovering well after your op and taking it easy

I myself was stage 1b/grade 3 serous adenocarcinoma and had 3 sessions of Brachytherapy which was supposed to be "belt and braces" .

Unfortunately I recurred about 10 months later with spread to Omentum, peritoneum and vaginal cuff. I've just finished 6 cycles of chemo, Paclitaxel and Carboplatin (Paclitaxel stops the cancer cells from separating into 2 new cells stopping the growth of the cancer. Carboplatin interferes with the development of the genetic material in a cell, the DNA. This stops it from dividing into 2 new cells and kills it.)

Had a scan after 3rd cycle and was 50% reduction and I'm due a scan at the end  of May.

I'm feeling well, chemo wasn't too terrible, have a look at the posts on the Chemotherapy support thread where ladies have discussed treatment and side effects.

It’s always helpful to others if you write a little something (or a lot) about yourself and how you came to find yourself here. Why not take a few moments to update your profile. It's always helpful for us to read if we want to ask you questions and you also won't end up repeating yourself. You can enter it into your profile (click on your username and select “Profile”) . You can amend or update it at any time. If you’re not sure what to write, just click on my username.

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. 

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful for when you have surgery.

You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.

There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.

Sending you welcoming hugs, Barb xx 

I'm sorry to hear this. I know nothing about this yet. I'm not that far into it, but I hope it is good that they found IT.

Hugs

Hi Angelafish 

I have Grade 3 Serous but my stage was 1a as cancer found in a polyp.  I have started chemotherapy  Paclitaxel and Carboplatin Six sessions one every 21 days.

I'm unlucky in that I've had a reaction to  the Paclitaxel as soon as its administered  but they say it doesn't happen to everyone. Don't worry if this happens as they know exactly what to do,  they give more drugs to counteract and then try again,  in my case it was fine when retried. 

It is a long day as the Paclitaxel and Carboplatin are given separately.  I Normally go in at 9am and go home around 5pm

I opted to have scalp cooling cap so ai don't lose my hair, I don't know if this is something you would be interested in,  I can.let you know more if you so wish. 

The first week of chemo I feel a bit rough but after this period I get back to normal.  I am currently working from home , I have an admin job but only  work 3 days a week 22 hrs.  I am lucky that my employer has been very accommodating to my needs .

If there's anything you would like to ask please fire away.

X

Thank you Mad   Your experience and information is really useful. 

Thank you for your reply and information. I have been reading a lot of posts from the endometrial cancer group and have found them a great help

had a phone call from my oncologists secretary a couple of hours ago to offer me a telephone consultation tomorrow as I have been waiting  for an appointment for nearly three weeks

Hopefully will know details and start date then 

Let us know how it goes.

Hugs, Barb xx

Good luck, keep us posted on how it goes. 

Robin

Feeling numb and emotional after telephone conversation with oncologist about starting chemo. He went through all the details and replied to my questions but after a while he mentioned stage 4 diagnosis which came as a bolt out of the blue as my consultant surgeon had not given me this information when discussing my histology report. He was really apologetic and said I should have been told this before and he assumed I knew

As the cancer is microscopic at the moment he suggested I have a ct scan in a couple of weeks and if there is still no visible sign then leave the chemo for a few months and enjoy the summer and start the chemo when something eventually shows up on 3 monthly scans

Just trying to process lots of information at the moment 

Hi. Angelafish. Oh my love if I could give you a cuddle I would. What a bombshell to have to take in. After my hysterectomy I was stage 1b/grade 3 serous and had 3 brachytherapy sessions. A peritoneal flush had detected some malignant cells but I wasn't offered chemo at the time.

After about 8 months I suspected something was amiss.

Fast forward 10 months and I recurred with lesions on liver on spleen and masses in Omentum, peritoneum, abdomen and above vaginal cuff. 3 sessions of chemo reduced all by half and 3 sessions later I shall have a CT scan on 24th May which I hope they're all but gone but I'm told they will come back so I've had a while to get used to being stage 4. I'll have blood tests every 3 months for cancer markers and will see Oncologist every 3 months. He's hopeful I won't need treatment until Xmas.

They can delay chemo for a while and check with CT scans every 3 months as he says. If you want to PM me you can. Make friend request and I'll answer anything I can.

Big hugs, Barb xx

Hi Angelafish  I am also Grade 3 serous.  Until yesterday I thought I was 1A and then given additional information by oncologist that I may be borderline 1B with micro cells in LSVI.  This was a bit of a shock to me too as no mention had been made of this by the surgeon I saw previously for results.  This is the cancer roller coaster.  Bit by bit more information seems to come out.  My only comfort in it all is that I am getting extra treatment than I would otherwise get to hopefully improve my prognosis.  I know how awful chemo is, previously having had 8 sessions for breast cancer.  But it is systemic and will kill any remaining cells.  I give you a virtual hug x