Newly diagnosed stage 3 endometrial cancer

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Good morning ,

I have just been diagnosed with stage 3 endometrial cancer (very scared). I need to decide pre op whether to have lymph nodes removal or lymph node radiotherapy. I am really struggling to make a decision after reading up on some side effect/ late effects of both.Anyone else had to do this? Not expecting anyone to te.je what to do obviously but would appreciate anyones experience in either. Thank you 

  • Hi my cancer is grade 3 but I wasn’t asked before surgery what I wanted to do and they left mine in as they are close to a major blood vessel.  I am on chemotherapy currently as unfortunately it has gone into two of the pelvic lymph nodes but the chemo is working.  Sorry I can’t be much help but hopefully someone else have a bit more experience. X

  • Hi 

    I also was given choice whether to have some pelvic  lymph nodes removed for sampling along with hysterectomy and  was put off by the possible side effects. I called CNS nurse she had a discussion with me over the phone as I understood I would get lymphodema. So she said would ask the surgeon who kooked at my case and medical history, and said because I was fairly healthy with no underlying health problems my risk fir lymphodema or any other complications were pretty low. Based on this I decided to agree to lymph nodes removed  as this would also accurately stage the cancer and therefore treatment would be more targeted. 

    Madesp 
  • Hi, I agreed to lymph node sampling.  For my own peace of mind I wanted to know if the largest lymph nodes were cancerous so that I knew the extent of any spread.  

  • Thanks for the reply xx

  • Hello Rachel

    hope you well x. Just read your profile.  My mum had some cancer too in her pelvic lymph nodes.  She completed chemo and is on a 2 year trial of Atezolizumab.  Happy to share details 

    keep going.   You will get through it xxxx

  • Hi Rach_E I was just wondering how you are doing at the moment? Iam so pleased that chemo is working for you and you are staying so positive. 

    Robin x

  • Hi  I am doing well thanks.  I had my fourth treatment on the 7th, side effects weren’t too bad felt a bit fuzzy on the Saturday and have had a bit of joint pain but other than that all is well. X

  • Good morning all,

    I have been reading all your comments & impressed  by the support people give & receive on this site. An update on myself; I'm due for keyhole surgery tomorrow ti have womb, tubes, ovaries & cervixremoved  After a  LOT of thinking ( and over thinking too) I gave decided to go with lymph node removal at this stage for accurate  staging and more tailored treatment rather than radiotherapy. Have been given such great support from Adenbrooks hospital and am very grateful for this. Hope I've made the right decision. X

  • Good morning toilet. Good luck tomorrow with your surgery, it sounds like your hospital have been great supporting you.

    Please let us know how it goes, will be thinking of you.

    Robin x