Hi all,
Tess here. Had my Hysterectomy 4weeks ago, getting there slowly. But better each day. Had a call from my surgeon this afternoon with the hystology results.
Unfortunately, although still stage 1a the cancer has been found to be serous which he said was an aggressive type and that I will need chemo/radiotherapy. He said the oncologist will call me next week to arrange an appointment to discuss. Am really worried and scared, he said I didn't have to go ahead, but advised me that It would be best to help stop reoccurance.
I feel really upset and am full of anxiety. Can anyone help please.
Thank you
Hi Tess57. We've had dogs ever since we got married in 1980 - I couldn't be without them. Lost my beloved Podenco a Spanish dog we rescued when we lived in Spain - he made 17 years old and we lost him last May, still look for him every day - eventually he wasn't up to walking much but when we came round his little face would be looking for us out of the conservatory.
Our current dog is a very naughty Scottish Deerhound. When hubby's daughter marriage broke up she asked us to take him on - wasn't sure with our old boy and also our poorly Lurcher, sadly lost him the previous October. Also we had and elderly spanish cat and the dog wasn't used to cats! We lost him just 3 weeks ago and it still hurts - he also made 16, must be a record for a Spanish cat.
Anyway we've just got him now and he isn't calm and laid back like the breed standard (had 2 in the past) If another dog barks at him he'll lunge and 51kgs of dog pulls you over easily. It's the first dog we've taken on not a puppy therefore pretty hard to change his ingrained bad habits - he's coming up to 6 but we won't give up on him. Worryingly he pulled hubby over last week and he's not long had a hip replacement! I'm not strong enough to hold him at the moment.
I'd definitely get a dog, they're the best companion you can ever have, no disrespect to hubby's and partners bt a dog's always there for you.
Hope your family visit goes well. It's hard I know what you mean about being nervous mixing, we haven't mixed with anyone in a social situation since last July - will have a lot to catch up on. I do suppose we've got to get back to some sort of normality one day. Once I finish my chemo at the end of this month I hope to venture out more.
Big hugs, Barb xx
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"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Hi Barb,
Thank you for your fantastic message. I am inspired by your positivity. Hopefully, if all the treatment goes ok (once I know the plan) getting a dog is definitely something we will look into.
I've taken my first steps today to do something different. Been outside with my partner to town. He bought me a bacon sandwich and had a lovely Cappuccino. Had a little walk around the town. I've not done that since all this started last October.
Still a little anxious about the family staying over this weekend, but hopefully all will be fine our grandson is 5 years old and I haven't seen him since August.
I am still awaiting confirmation of my oncologist appointment to discuss my treatment. I hope I hear soon. My GP is calling me this afternoon for a welfare chat.
Thinking of you and a massive hug right back. xxx
Hello I hope everyone is keeping positive, I havn't been on here for a while. I was diagnosed last June with Serous and at the time I couldn't find many recent posts. I too was stage 1a Serous., and was given the option to choose the follow on treatment . my surgeon was very confident that they got rid of it all it was 50% into the wall of my womb, but contained. I had radical hysterectomy so they took everything including cervix and omentum and lymph nodes but I accepted the offer of the chemo to give myself the best chance, Unfortunately for me i had a bad reaction to it so made the difficult decision to stop treatment. As far as i am aware I am clear now, I am only having telephone consultations with the option of face to face if I start feeling unwell. I am a very positive person and though I still have episodes of worry I refuse to give in to it. I too got myself a little doggy, he has been my saviour, keeping me moving and taking my mind off things. So im sending good wishes and positive vibes to you all, keep positive, keep busy, and take care .
Hello nannyjanet, thank you for sharing your journey.
Do you mind me asking what chemo you had the bad reaction to. I'm 'only' on Carboplatin and thankfully I haven't had any bad reactions to it. I did have some peripheral neuropathy after my first treatment but thankfully not after my second nor third treatment.
I do know Paclitaxel (Taxol) is strong and wondered if that was the drug you had the reaction to?
Sending positive vibes to you that you continue to remain clear.
Hi Sara 16, yes it was the combination Carboplatin/Paclitaxol..... It was the Neuropathy that saw me off, Iv never experienced pain like it, I could hardly walk and nothing would take it away, also very Breathless. By the time my second chemo was due I still wasn't well enough to have it so decided to call it a day.I know this reaction is rare so don't want to put people off, aIm glad I had the first one because I can say I tried. but It just wasn't for me.
nannyjanetI say this wishing you the very best but I wonder if you would have been OK if you had just been given Carboplatin. I hope you never have the requirement for more chemo but I wonder if your body may be able to cope with just Carboplatin as opposed to being given the two drugs.
I have thought this myself.. when they were 'Hooking me up' to the drip I heard one of the Nurses say" Wow this is a strong one " and she got a colleague to check the paperwork..I assumed it was because it was for Serous , but it does make you think. Also I Honestly don't know what I will do if It comes back..!!?? there was a suggestion of a reduction in the prescription but the Oncologist said at the time that in my case the negatives outweighed the positives so decided not to continue.
We are all different and have differing views but @nannyjanet I can honestly tell you if I were in your shoes even all these months later I would ask them again. You need to understand their thinking for your own peace of mind. The oncologist says they can't reduce the strength of the prescription but instead it is just stopped altogether. My question, if I were you, would be to ask them 'would I benefit from Carboplatin even all these months later from just Carboplatin'?
For my own peace of mind I really would need to ask that question and if Carboplatin was offered to me then I would take it.
I had mild peripheral neuropathy but my consultant oncologist said to me to see how I get on after the second treatment (which was fine) as if it had continued the prescription strength would have been adjusted. I am really struggling to understand why you haven't been offered just Carboplatin but again I'm not an expert but the oncologist needs to explain his or her reasoning to you.
I know what we are all going through is incredibly personal and if you decide to leave things how they are and not enquire I totally understand that is your decision.
Hi Sarah16. I know the lady that arrives the same day as me only has Carboplatin and each time she's had a slight reaction to it and they give her a short rest and resume - she just gets a bit hot.
Hugs, Barb xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Hi nannyjanet. I'd be inclined to agree with Sarah16 and have a word with your Oncologist.
I'm lucky coping not too badly with Paclitaxel and Carboplatin and just one more to go!
Hugs, Barb xx
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"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
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