Lymphoedema problems

Hi DiEB,

I had my operation, with lymph nodes removed, nearly 4 years ago. After the operation I noticed I had a 'Pouch' above my groin area, which has now gone.. One consultant said it was fat!!! (It wasn't there before) After about 3 months my left ankle began to swell at night. I asked 4 medical people about it and they all said it wasn't bad and not to worry. I keep having spells worrying if I should be doing something with it. We went away a couple of weeks ago and I was on my feet a good bit and walking 4 or 5 miles a day. My ankle swelled at night then, but since coming home its a lot better and I've forgotten about it! I can't work out if heat makes it worse, or if its being on my feet all day, or what!! My own doctor said to keep it up in the evening, and it goes down overnight. By the way, I was Grade 2 and only had an operation.

Its interesting that they thought it might sort itself out. I'll be interested to hear what they do with you. xx

Hello

i had a total laparoscopic hysterectomy last December and had 18 lymph nodes removed.  I was warned before surgery that I would have a high risk of lymphoedema as a result.  So far I haven’t had any symptoms, but I read a very helpful booklet that you can download from the Macmillan website, called “Understanding Lymphoedema”.  You might find it worth a look.

Thinking of you

Pippa xx

Hi DiEB and welcome to our corner of the Online Community where you'll find a lovely group of supportive ladies. It's good to read you're recovering well from your op but not so good that you've a few problems with Lymphoedema. There's been a few ladies on here who had the same sort of problems. Pippa (below) recommended you read the booklet so I've put a link to it here. Lymphoedema

I also see you're about to start Brachytherapy? How many sessions? I myself had 3 and TBH I was terrified at the prospect but in reality they were just undignified, not at all painful. If you read back over some older posts you'll find them, you can also type Brachytherapy in the Search bar and posts will come up. If you've any questions, come back and ask, there's always someone around to answer, give you a virtual hug or hold your hand.

It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.

Sending you welcoming hugs, B xx 

Hi Mrs BJH 

Thank you for adding that link - I don’t know how to do it!  Your link is to the Lymphoedema forum, but there is also a very helpful booklet, like the Understanding Endometrial Cancer one, but called Understanding Lymphoedema, if you’re able to make a link to that too!

pippa xx

halligoosiman

Hi Pippa

Think it should be here Understanding Lymphoedema booklet. Let me know if it doesn't work.

Barb xx

Hi again DiEB. Please see below my reply to Pippa. Click on the link there to open the Macmillan booklet Understanding Lymphoedema.

Barb x

Hi, DiEB

Alongside the info you can get from Macmillan, there is also the Lymphoedema Society which you can find online.

All the best 

That’s it!  Thank you so much!

Pippa xx