Cervical cancer..a bit about my journey..

  • 13 replies
  • 88 subscribers
  • 2682 views

Hi everyone. Hope you are as well as can be.

A bit about me  I was diagnosed Feb 3 2021 with , very luckily, grade 1b1 cervical cancer  on 9th April 2021 I had a full open radical hysterectomy with lymph node removal. I am one of the very lucky people who haven't needed further treatment. I know I'm beyond lucky but in all honesty its happened so quickly that I don't even feel as if I've had something as potentially life changing as Cancer. I almost feel numb apart from the pain from the surgery and the inability to do anything !!! In fact I feel a bit of a fraud compared to everyone else. I have a node on my lung they want to keep an eye on but even that hasn't registered with me as potentially anything dodgy !! Not sure if this is normal or not !!

Thinking of you all out there going through varying degrees of hell and wishing you all well Heartpulse

  • Hi there I seen u haven’t had a reply I never had the same cancer as you. I had womb diagnosed last November age 31 that was a shock and my life was turned upside down inside out lol! But now a few months on I am starting to feel ok not 100% but one day I will I hope. Like you I only needed surgey I also feel like a fraud expecially when u read the paper and see people have died of cancer. Am wishing you well on your journey threw this we will come out the other side stronger wishing you all the luck in the world xx

  • FormerMember
    FormerMember

    Hi Hatfre,

    I was diagnosed with Endometrial Cancer on the 4th of April 2021 (Stage 1A); I’m 36 and currently having hormonal treatment so that I can hopefully have IVF before I need to have a total hysterectomy.

    You’ve had a lot to get your head around in a short space of time so it’s no wonder you feel numb (apart from the physical pain). I think a lot of people feel like frauds as there is often an expectation of how unwell cancer patients should be but it is a condition that I have seen many people get through and others live with for a long time.

    Your journey is as important as other people’s & I wish you all the best for a speedy recovery. Xx

  • Hi . Good to see you made it to the Womb Cancer forum (It was me who wrote and said you should join us as well as Cervical)

    Being diagnosed with any cancer hits you like the proverbial freight train. All the ladies here are at the start, in the middle, or at the end of the rollercoaster ride no-one wants to get on. But we've all offered support to each other through the good days and bad.

    If you could pop something about your journey so far into your profile it helps others, plus you don't have to repeat yourself.

    Take time to heal, don't overdo things and if you've any questions, just fire away!

    Big hugs, B xx


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • Thanks Mrs BJH I have finally sussed out where to out my story on my profile. ( I'm not brilliant with this sort of thing, its the first forum of any sort I've joined !! 

    Looking forward to reading peoples journeys and hopefully being able to support x

  • Hi Hatfre, good to hear it's gone well for you on the op front. I thought I'd reply as I too had a node on my lung show on my scans back in Spetember last year ahead of my hysterectomy. The gynae oncologist said we should check it again in 6 months: so I had a CT scan last month and an X-ray of my spine as I was having burning pains in my lower legs. I'm seeing the gynae tomorrow so hope to hear what's going on (or not). My next oncology appointment isn't till August but I expect that would change if any bad news in the scans. I feel pretty well generally (not coughing more than usual or other symptoms and leg pains have subsided). Biggest challenge is getting back to exercise and eating less - my clothes are definitely getting smaller...

  • Hi . Just read your profile. This was the first forum of any kind I've ever joined. I didn't get much support from the other half and once I'd completed my 3 Brachytherapy sessions it was more like "You're cancer free so what's the problem?" I hate it when you read about everyone having mental issues but I confess I did have problems believing a) I'd been diagnosed with cancer and b) I'd beaten it.

    You're not a fraud at all! Don't think that! Some other ladies have felt the same as their brush with cancer was so brief. It might be a good idea to take a look at the Life after cancer forum.

    Keep healing and take things easy, Barb xx


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • Hi. I too don't have much support from my ex, he's very much..we'll its gone so thats it then. I'm sure he would be interested if it wasn't and it impacted his single life by having to have the children live with him !!! He even asked me about my will 10 days after diagnosis !!! 

    My stuff is definin my head really and I think its just time. Thankyou for being there

  • Good luck with your appointments. I am back in 10 days  for my first gynae spot since surgery and will ask about my lung then.  See what they say. I too have awful issues with legs but bith thighs . Think its nerve stuff.  Hopefully it will settle.

    Good luck eith everything x

  • Thanks Hatfre, all went well with my internal exam today - all healed up and no prolapses. No news on CT scan though - gynae consultant has put it on MDT list for next week so fingers crossed for good news. The pain in your thighs I hope will ease: mine are much improved but has taken a number of months.

    Take care,
    DX

  • Hi Dreamweaver, good to hear your recovery is going well. Strange how so many ladies are reporting leg pains. Is it nerve pain do you think?

    hi to you Hatfre. I know what you mean about getting your head around what’s been going on. Like you I couldn’t believe I had it,  and now struggling to believe it’s gone. Fingers crossed eh!

    Viv x