Celebrating year one

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It was a year ago today that I had surgery.What a year it has been. The race to get diagnosed as COVID was emerging, getting on the last operating list. Self-isolating on return from hospital, investigations, results, surgery, more results, dreadful cancer related fatigue, losing friends to COVID. Hello to the world of zoom, finding you guys and on and on. I have been well supported and shown great kindness.

Milestones are important to me so I marked today by looking back and celebrating getting through all that has happened this year and looking ahead to year 2.

I am waiting (and waiting) for results of biopsies taken from vaginal vault over a month ago, I was told initially that results should take 5 to 10 days but there is a backlog, not acceptable but beyond my control. I have only told one friend about the biopsy this time besides you guys.

Best wishes to you all.

Honey BeeTwo hearts

  • FormerMember
    FormerMember

    Hi Honey I am just starting on this journey. MDT meet tomorrow so I will know what’s next. I agree this forum is very helpful. Can you speak to your nurse to chase the biopsy as a month seems a very long time. Xx 

  • Hi Hovehoney,

    Well done on reaching a year, especially during the last horrible year! I hope your biopsies are clear. xxxx

  • Thank you both for your replies. I have just heard that the results are not back the lab is chasing them up. I have no idea what that means. Not banking on results before Easter now.

    Best wishes

    HoneyHoney pot Bee 

  • FormerMember
    FormerMember in reply to Hovehoney

    Hi honey. My congratulations too on reaching your first year. I do hope your biopsies come back clear when they finally arrive. All this backlog is a pain and anxiety inducing. You have a happy Easter now. God bless. Love lamb.xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hello Mrs weasley. Welcome to the site from me. Just wishing you well with the MDT meeting tomorrow and hope it goes positively. I shall be thinking of you whilst having my CT scan, also scheduled for tomorrow. Take care now and let us know your results. God bless. Love lamb.

  • FormerMember
    FormerMember in reply to FormerMember

    I am beside myself. The booking clerk has just rung to see if I can go next week for an appointment. This is not what I was told would happen. My mind is now coming up with all sorts of scenarios that they can’t tell me over the phone. I really don’t think I can do another week waiting. no indication of what the outcome of MDT meeting was. I have left a message on nurse specialist answerphone so hopefully they will be able to help me tomorrow. I have had a week of getting myself into a state over this,. I am so upset. Can’t even get through to my GP to see if they’ve sent report there. 

  • The stress of waiting is the worse I hope all goes well for u 

    is it standard practice to have biopsies at 1year appointment 

    stay safe x

  • Hi Mrs Weasley, try not to read too much into it.  Sometimes these people are just not well organised, and they don't think of the impact of what they do and say.  I definitely had a couple of shocking communications from hospital - and I did complain afterwards.  Happily it is all behind me now.  Just bear in mind that you may be dealing with someone disorganised, thoughtless, or plain thick. The doctors were always great with me and I don't think they realise what goes on day to day in between seeing you in clinic. I hope your CNS gets back to you with some information or at least some moral support.

  • Hi Lara 5,

    Thanks for your reply. It isn’t the norm to have biopsies taken but there was a growth that the doctor saw at the top of the vaginal vault where the cervix was so she removed it there and then and treated the area with silver nitrate.

    Best wishes

    Honey Honey pot BeeTwo hearts

  • FormerMember
    FormerMember in reply to Hovehoney

    Fingers crossed for you Honey, sorry my reply sort of hijacked your OP xx