Feeling uncertain

FormerMember
FormerMember
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Hi all.

I had my MRI scan Weds night. That was an experience. Results going to MDT next Weds, so hopefully I will have a way forward next week. I just wish I could turn my mind off, which is stuck on worse case scenario all the time. Just been speaking to hubby about it and I think it’s because all the way through from going to Docs in September with what I thought was perimenopause I have been told/ reassured it’s probably nothing to worry about, and now gave a cancer diagnosis. So I am now worried that it’s going to be very bad. Just wish I could turn my brain off this doom setting. My specialist nurse has reassured me I am fully in the system now and it’s tried and tested, but it’s still difficult to deal with. Especially as we are still in this bloody pandemic. Anyway just wanted to get it off my chest. Not sleeping isn’t helping either. Xx 

  • Hi Mrs Weasley,

    I think we are all guilty of thinking the worst. I'd rather think like that and have a pleasant surprise, than have it the other way round!! I even asked the consultant if the operation was worth it, thinking if there was no way through to the other side I wasn't going to bother!!! Both she and my husband told me off!! Our kind of cancer is apparently slow growing, so we have that in our favour.

    And as I said to someone else- this virus isn't helping anyone. Especially when you have been told you have cancer you need something to look forward to, and that is impossible just now. I found I felt better just getting out for a walk looking at Nature, and that was well before the virus. At least we can still do that.  xxxx

  • FormerMember
    FormerMember

    Thanks Nanny Anny I think it’s a combination of processing it, feeling like I am in limbo and things not being normal at the moment. Hopefully next week I will feel more positive. Xx

  • Hi,

    I think this time before the operation is the worst bit. I think when you have a plan of action you will feel better. I tried to keep myself busy so that I had less time to think about it! And if you have an operation you won't be doing much afterwards for a while. You can use the time to clean corners in your house that you won't be able to touch for a while. You won't be able to stretch or bend or lift for a bit. Can hubby cook? If not, you need some freezer meals. I found I didn't want to stand for too long. And, although hubby can cook a bit, I didn't fancy the raw fish or raw eggs I got!!!! (Thank goodness for microwaves) I cooked after 2 days!!!! xxxx

  • Hi  . It's what we've all said about the roller-coaster ride, highs and lows, brain constantly engaged and lying awake all night staring at the ceiling. 

    Once the MDT have met, there'll be a rapid acceleration of events. Make sure your bag's almost packed with your Brigit Jones, nighties, loose clothing, phone and charger, books and as says batch cook food for freezer, clean out your cupboards. I managed to get away with not hoovering for quite a few months - then I was sussed!

    To be honest the word Cancer was what everyone else had, no way was I going to get it. When I used to take my hubby for his Prostate Cancer radiation treatments, I used to look around the waiting room (Pre-covid obviously) and thank God I wasn't a patient. Little did I imagine a few years later I'd be one having treatment.

    Anyway, let us know when you hear something, we're here to hold your hand>

    Big hugs, Barb xx Hugging


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  • FormerMember
    FormerMember in reply to MrsBJH

    Thanks Barb. Bag ready, as definitely couldn’t trust hubby with that in an emergency! Hopefully by Thursday things will be a bit clearer. I always thought it would be breast cancer I ended up with as my mum died of it. So this has been a shock.  Thankful for the support on here x 

  • FormerMember
    FormerMember in reply to NannyAnny

    Thankfully Mark can cook. We are really enjoying the Gousto recipe boxes at the moment.