Results from Histology post op

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I have just had the call from my CNS nurse with my results. The cancer is still a grade 1 endometrial but it has spread to both ovaries. I don’t really understand this but she said it was very rare for this to happen the way it has. My lymph nodes are all clear but the cancer has spread through the lymphovasular area to the ovaries. I have read from google that this would make me LVSI positive which I don’t believe is very good news. She said I would need 6 months of chemotherapy and that I am Staged at 3a and now with a higher chance of recurrence. I really hoped this was all over  now but it’s not. Stage 3 is classed as advanced cancer because it has spread. I just really hoped I would be clear :-(  does anyone know how quickly the chemo starts or what to expect or if because the wound hasn’t healed will they still start it. Sorry for the rant. I think I’m panicking 

  • Oh Bella...

    So very sorry to hear that the news is not what you - and we - had been hoping for.  At the moment you’ll be feeling shocked and sad, so try not to overthink things - although I know that’s way easier said than done.  Your team will have met and discussed your histology and they have a plan for you - and the plan is one designed to get you better.  It may take a little longer than you’d hoped, but it’s still the plan and it’s what’s going to happen.  You are in very safe, experienced hands and although all this is unfamiliar to you and is new and terrifying, your oncology team are proficient in dealing with it.  They know what you need and they’ll see that you get it.  Their job is to deal with this and to get you well again - your job is to let them do it.  You can do this.  Somebody said to me that you shouldn’t google things, because all the data is at least 5 years , and often more, out of date, based on treatments as they were 5 or more years ago.  Cancer treatments are moving forward all the time and you will be given the very best.

    For now just feel what you feel. Be sad and be scared because that’s normal.  But also hold onto the fact that you’re going to be looked after every step of the way.  And we’ll all be holding your hand too, and be here to chat and to listen to rants whenever you need us.  This horrible time will pass.

    Sending very much love

    Pippa xxx

  • Hi Bella, Sorry to hear your news. That does sound unusual. I don't think I know of anyone else on here that's happened to in the three years I've been on here.

    My understanding (with my daughter and husband) is that they let you recover for 6 weeks in between treatments. In my daughters case she had an operation for breast cancer, 6 weeks later chemo, then 6 weeks later radiotherapy. She was rough during chemo, but most ladies on here don't seem to be affected so badly. Perhaps the fact that it brought on her menopause affected matters. xxxxx

  • Dear Bella,

    I too am sorry to hear your results. You have been through the initial investigations, diagnosis, major surgery with the difficulty of delayed healing so you are understandably feeling panicky about the result and chemo.  Please do let us know how you are.

    Sending you love and hugs.

    Best wishes

    Honey Two hearts

  • Oh Bella H. I'm so sorry to read your post, we all hoped you'd be out of the woods. Don't worry about panicking and the rant, we're all here for you sending virtual hugs. Your Oncologist team will be back to you very soon with a treatment plan, I don't know if they will wait until your scarring has completely healed or get started very soon they'll know what's best for you. 

    I can understand you must feel absolutely gutted, try not to feel too deflated though it's so hard, the rollercoaster ride continues ....

    Sending big hugs, Barb xx Hugging


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  • Hi Bella hope you are feeling ok I really hoped surgey was all you would need it’s ok to panic and be scared you have came this far and u will get threw the rest? How are you getting on after your op?xxx

  • Thank you. The wounds are still Not healing but the pain is much less now, Hardly taking any pain killers now. 
    I feel so sad today, I know Deep down I will get through the treatment and probably be okay but I just feel so scared and tired. It was hard just getting the initial diagnosis but then having to have the bigger operation and losing my fertility and then now theM Saying it’s advanced, I probably won’t even be able to adopt now. I just wish I felt brave. 

  • You are brave there is no doubt about that look at what u have Bein threw losing your fertility must be soo hard on you. Am not sure about the adoption get threw next couple months of treatment and then enquire about it.try get some rest sleep if u can might be difficult sending you best wishes xxx

  • Oh my love, it's natural to feel sad. From not even knowing you'd need an operation, going through it and then finding out you've now lost the hope of giving birth, you must feel lost. Having children wasn't really an option for me, my hubby'd been married before, said at the outset he didn't want any more and basically I went along with it. Now I'm in my late 60's I have regrets but I can hold up my hand and say I've never changed a nappy in my life! I've 2 stepchildren, 3 grandchildren and 2 great grandchildren - the latter I've not met due to Covid.

    Nowadays science has made huge breakthroughs and advanced doesn't necessarily mean what you think. You'll feel a little better once they have your treatment planned.

    I'm sure you'll be able to adopt, once you feel more up to it talk to your GP.

    Sending you biggest hugs, Barb xx Hugging


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  • OOh Bella,

    I well remember feeling like this. I had 2 miscarriages, and couldn't face any friends with children. I remember walking out of a christening because I just couldn't hack it. Time is a great healer.

    Science came to my rescue. The doctors stitched babies into my womb!!! I'm sure science will help you, too. Concentrate on getting yourself right again, then think about the rest.  XXXXX

  • Thank you all so much for your support. I felt so scared yesterday and could Not see anything but the worst case scenario. I feel so much better today and much more positive.
    If anyone has had chemotherapy I would be grateful if you could let me know your experience and what to expect with appointments and how you felt etc. I have an Oncology appointment next week to discuss it.
    Thanks again everyone xx