The good, the bad and the downright ugly!

FormerMember
FormerMember
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Hi folks, lamb here after an absence which has literally turned my life upside down. If anybody told me how this was going to pan out four weeks ago I would not have believed them. I have not been around for a bit as you may remember my daughter was expecting a second baby. So duly returning from abroad at thirty four weeks hubby and I set off to Sussex to look after my granddaughter  who is into everything to give my daughter some much needed rest and to help prepare for the new arrival by washing clothes, sorting bedding etc..you know the drill. We thoroughly enjoyed the days and picnics in the garden, trips to the park and I am pleased to say my daughter gave birth by caesarean in early October to a healthy baby boy so we are very blessed in having not only a wonderful granddaughter but also a grandson now. My parents, who are both terminally ill are still trundling along and although the news was a bit much for my father to take in my mother knows she now has two great grandchildren. So far so good. Baby arrived home, we had our cuddles and photos taken and prepared for the busy weeks ahead. As some of you may know I have been experiencing niggly pains since January which I have mentioned to the consultant and the radiologist doing the scans. I had a very bad infection after my operation which had to be packed and vacuum  cleared which finally decided to heal on my wedding anniversary past year..a total of six months. Anyway the radiologist was very good on both occasions when having my scans and had a good look but couldn't see anything so we came to the conclusion it was adhesions from the surgery pulling. I had a telephone consultation with my consultant when I was at my daughters and as the pains were particularly bad as I thought from lifting my granddaughter I mentioned them again only to be told that all that should have cleared up by now and I should be doing cartwheels. She did arrange for me to have an appointment in a month's time if it was still going on though . In the meantime I was in agony and experiencing vomiting and diarrhoea and had no option but to call my sister to collect us and take me back to London so I could contact my own gp, who promptly sent me to hospital on blue lights with a sepsis diagnosis. In these times of covid there is no information in or out of anywhere and your relatives only see you wheeled into the back of the ambulance. Thank goodness the paramedic reminded me to take my phone and charged with me, the last thing on My mind at that point but they took me thankfully to the hospital that I had my surgery in a year and a half ago which, after numerous arguments between departments, proved a blessing in disguise. Countless tests a followed in resus and despite my clothes having to be cut off as I had swollen to double the size of a beached whale they decided to feed me into the c.t. Scanner to examine my abdomen although there was,an argument about that as I hadn't been proven covid free which in a way was where this whole sorry saga decided to take a different direction. I was found to have a bowel obstruction and was full of infection. Questions followed. Who did my surgery, when was it done, you are nil by mouth from now not that I wanted to eat anyway. When you are struggling to remember your name, let alone your date of birth it all becomes a bit much. Then to top it all along comes a breezy nurse just on shift with the news that the ward doctors were coming round tomorrow and I may be going home so that was something to look forward to wasn't it! I didn't want to go home..I felt so flipping Ill so that was a sleepless night in the making. To round it off in comes a gynae consultant at 10 at night to give me an internal examination which put me on the roof, announcing all scans had previously been clear at the top of her voice and it was nothing to do with gynae. By now I was really worried as to what was going on and terrified of being sent home which is unusual for me as normally I am quite calm about these things. I dissolved in tears the following morning when the doctors turned up and begged them not to send me home only to return hours later in the same state. They told me they couldn't send me home until they had sorted this problem out and who had told me I was going home anyway. That was momentary relief to my ears until they asked me what I knew about my scan which apart from a bowel blockage was nothing. Now, this is not how it's supposed to be done, they were junior doctors I think but I was told bluntly that the cancer had returned, the same endometrial cancer and there was a tumour the size of a grapefruit entwined amongst everything and there were signs of spots on the liver and elsewhere. Then they left and I literally howled into the pillowin complete shock and not knowing what to tell my family. I had two biopsies under local anaesthetic, the crash trolley came out twice in the next few days as I took a turn for the worse and the family were called in. My poor husband was himself in hospital By Now having had a complete breakdown. Various tubes went in and out, nebulizers deployed. How on earth can you go from being fit and well three weeks before to this doubly incontinent wreck who has now been told I need to build myself up as I am too weak to undergo surgery under general anaesthetic and far too weak to undergo  chemotherapy, have been discharged from hospital because immune system is trashed by all the antibiotics which I am still on and covid cases are being admitted so I'm at risk. I can barely walk, have no energy and am now seriously wondering who is going to win this battle..it or me? Me of course..i don't give up that easily. But I'm struggling with this intense anger ladies which is unusual for me. To the point of yelling,throwing stuff. My husband and I had our ruby anniversary, couldn't celebrate it as we were both in different hospitals but we had plans to enjoy retirement, our grandchildren, the garden. I hope that is all still possible in the future and i know I have the prayers of those who know me to strengthen me. But what I suppose I am trying to say i s, and I digress from my normal advice here through this experience is please, any abdominal pain mention to your doctor unless you know what is responsible for it because we are alltold to look out for bleeding, discharge etc and this is by and large an easy cancer to cure. My pain was in my belly , well it ended up pushing all my organs out of place. The scans would not have detected it as they were too low down but you know your bodies ladies and without wishing to panic anybody if you feel something's not right get it checked out. So there you go, good news,bad news and ugly news but this lamb isn't done yet..it's a fighter even though it may be u upside down in its Ditch again. Thank you for listening..I feel much better now for that rant. God bless everyone. Love lamb.xxxx

  • So sorry to hear you have had such a  very rough ride, but you are strong and we are all here to support you every step of the way. Big hugs.xxx

  • FormerMember
    FormerMember

    Hi Little lamb,

    only just read your post so firstly belated congratulations on your anniversary, and the birth of your grandson.So glad that mum and baby are doing well. As for what has happened to you, what can I say? Somehow sorry doesn’t seem to be enough but I’m really truly sorry you’re going through all this on top of everything else. The way you were told reminds me of how my daughter, who is learning disabled was told she had MS by our GP. I was devastated but had to hold it all together for my daughter as well as try and explain it in a way she would understand. I at least had the comfort of going home  after getting the news,  you were stuck in a hospital ward with no access to family. It really breaks my heart that you had to deal with that on your own. It’s not much but please accept these little  gentle hugs Hugging Hugging in the hope they help get you through this awful time.  If you ever need someone to rant at please feel free, I really don’t mind. 

    Take Care

    AngieRaising hand tone1

  • As ever, all the lovely ladies no matter what are all here for you . I totally understand at the moment its a lot for you to take in and boy is it not easy to know what to say to your family either. Sometimes families want all the answers that we cant always provide but, here we will listen, support and be a sounding board for you. Its ok to have a damm good rant i think you have every right too. I am hoping your husband is home soon and you can both seat down and discuss everything you’ve been told, hoping all the options have at least now been fully explained. Lots of planning to as well for all possibilities we don’t like it but it can help to feel the pressure taken away that arrangements have been made for anything and everything. Its not an easy task but in a way not easy to just say take it each day. But in a way you do have to take each day as it comes, meet that new challenge in the hope that it brings you more control of an uncertain situation.

    sending you massive bear hugs and remember we are all keeping you in our thoughts and prayers. Remember my inbox is open all the time day or night, leave a message and I will get back to you.

    Community Champion badge_GBear Xxxx 

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  • FormerMember
    FormerMember in reply to GBear

    Thank you all for your good wishes and prayers and in particular all the virtual hugs. It is really helping me and knowing you are all behind me...don't think you can get a better support network than that. I am so blessed. Well I have finally got a hospital appointment for Monday morning where hopefully I can get some answers and go through things with the team And there will be a way forward. Whilst the days and nights are long and these negative thoughts keep dropping into my mind at any opportunity I have decided to take one hour at a time and keep the positive pants on rather than the negative nappy. It is just so typical of this disease to haunt you at every opportunity but why should I let it? Yes it would love to get the better of me letting me know all the dirty work it's doing but then why should I waste my precious time dwelling on it? Far better to try and achieve little things to poke it in the eye and rest up..I've been in my garden quite a few times today walking around and I didn't fall over as I was fearing. Mind you seeing all the weeds that have taken over since I've been at my daughters wasn't so positive...I had a nice tidy garden when we left now it resembles a wild meadow. I had great pleasure in pulling a giant dandelion out of one of my containers thinking how marvellous it would be if we could do that to our bodies..pull all the dead stuff out but then had a wicked thought thinking if it was watching I hope it saw how tightly I screwed it up and shoved it in the bin so it had no chance of survival. So I'm collating all my records and letters and compiling a list of questions ready for monday. HUbby, now out of hospital but still not 100% is coming with me for moral support and it feels good to have him by my side again. Onwards and upwards. I'll let you know how I get on. In the meantime thank you all again for all your support..it means so much. God bless you all. Love lamb.xx

  • Fingers crossed for you on Monday , so glad your husband is home and soon be on the road to feeling better, but good you both together now to deal with everything. 

    Community Champion badge_GBear Xxxx 

    What is a Community Champion?    Womb cancer forum  

    Call the helpline for free on 08088080000, 8am to 8pm everyday.

    “let hope be your lighthouse beckoning you though stormy seas" - Jessica de la Davies

  • So sorry to read about your shocking diagnosis. I’m almost two years post surgery but have been experiencing pain for over 18 months and have finally got my GP to refer me back to the hospital. You’ve given me the fight back. Will be praying for a successful outcome for you xx

  • Good luck with everything on Monday, Lamb. Your fantastic  mental attitude and the support of this group will keep you strong. Big hugs.xxx

  • Good luck on Monday I will be thinking of you.

    Hugs, Lesley xx

  • Will be thinking of you and sending up a little prayer for you on Monday xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hope all goes well for you on Monday. 

    Take Care

    AngieRaising hand tone1