Uterine Serous Carcinoma

Dear GBear, have you had more bad news or is it the lack of sleep that is bad news? Art can be so therapeutic n'est Pa's? I hope the commission goes well and serves 2 purposes. ️ xx

Lack of sleep yes not great admittedly, i am unsure if you’ve read other threads in the group or not but we lost a good friend last night. As much as I sadly knew it was coming, i am afraid i wasn't as prepared as I thought I would be, and honestly rather heartbroken by the news, and I send my thoughts and condolences to her family both her own and her community family, i ve been on the community since 2017 and she was a fellow champion and friend and the first person who truly calmed me when i had joined it was after my hysterectomy and everything was a total whirlwind and I struggled for a long time with unknown health complications too which keep rearing there heads from time to time, despite everything she was always there, it’s not something you forget but it’s something that you hold tightly too. Cancer is a huge scare to us all, and of course we have the worry of prognosis and what lies ahead, but here its family, the community is my second family .She did actually help inspire me with my art get me to gain confidence in it really, i am actually starting to see i am pretty good at art, not really found my best medium yet and I got into art and crafts really after being at the hospice they got me involved with a crafts group and i got lots of support and encouragement too. I was having rather a bad time and i had relaxation sessions  with guided meditation and they would do foot or hand massage to send you deep into sleep. I greatly appreciated everything they did/do and I actively support them when I can. Yes without doubt i find art very therapeutic.  Plus obviously I am nervous about my Dad and his surgery going ahead, its not cancer but it’s been really painful for him as his double hernia surgery he had a few years back failed and it’s taken ages to get it repaired, they used a mesh inside instead of stitches probably was cheaper doing that but it didn’t work so now he has to have it all fixed up again. 

I am so sorry for yours and the community's loss, it sounds like she was a big hearted person who helped a lot of people and will be sadly missed. Sending you a gentle wrap around protective hug, ke at your art and dedicate it to her. xx

Hi PicNik

Found this group so helpful, not yet got to the point where I need to phone someone about either cancer or abuse, however still that'd be difficult because we're pretty much together 24/7 and he'd want to know who I'm calling etc.Even my phone pinging to let me know there's a message annoys him. Keep forgetting to turn it off, then when I do forget to turn it back on. I have to delete messages otherwise he'll read them!

I've learnt how to tune out so I nod my head, hopefully at the right time! 

Stay safe & hugs to you, Barb xx

I so feel for you Barb, like treading on eggshells. I hope he isn't expectng you to lift and cook and clean?

I've just seen on my CT report that I have left Ovarian and pelvic varicosities (varicus veins) guess taking the tubes and ovaries out will sort that. Need to have the conversation with cancer nurse. Also, just got the operation letter from the hospital and it says I have to ring the ward before setting off from home to see if there is a bed for me! Eek! GBear have many people with cancer experienced there not being a bed for them even though the theatre is booked? Xx

No I'm being strict saying I can't do this or that (probably could but am milking it for all it's worth haha) As for the hoover he's used it several times. To be fair he's 10 years older than me, had one hip replaced and think the other is giving him gyp. Also he's having to do everything for the 3 dogs, 2 scottish deerhounds and a 17yr old jack russell.

I had a bed booked on a Gynae ward but ended up on a Thoracic ward - someone (like me in the end) must've needed an extra day. Care was just as brilliant but a noisier ward with nebulisers, pumps, drains and coughing. I should imagine in a gynae ward you'd get the benefit of like patients and the odd squeak of pain when they get out of bed!

I've not seen my CT report, nor MRI scan, not sure if I'd want to read it!!

Stay safe, big hugs, Barb xx

Hi MrsBJH - just an idea for enforcing your rules - could your specialist nurse (or someone from MacMillan?) give you a letter or leaflet setting out what you can and can't do, then you can put it on the fridge or somewhere for husband to see?  Have a look on the Macmillan site to see if there is any leaflet you can download.  BTW I had a noisy time while I was in hospital overnight after my operation even though I was on a gynae ward.  There were some youngsters who were all hyped up and nattering loudly about this and that, then later there was a confused lady who took to wandering.  I sat up most of the night reading as I realised I wasn't going to get much sleep.

I was told to ring in before I left home on the day of surgery, that was 5 years ago so well before Covid!  At the best of times beds can be in quite short supply and mine wasn't actually free till I came back from surgery.   It is really unusual for beds not to be available and most people do get done on the day but you may find yourself having to wait around depending on where you are on the daily list.  

Hi LittleRunner

Left all sorts of leaflets, letters lying about but he hasn't bothered to read them.

Good to know, or not, that gynae wards are just as noisy! Strange thing one night the staff were chatting loudly at 12.45 and the next two elderly ladies in the next bay were having a discussion at 03.15!!

Hi PicNik,

I had my operation 3 years ago. I had no trouble getting a bed, but when I was discharged with two other ladies we had to sit in the day room and wait for transport because they wanted to get the beds ready for the next lot !!!

The staff had a busy night beforehand with 27 patients and only two staff. We never got a drink that evening, and during the night the lady next to me got up for a drink of water and saw a pool of blood on the floor in the corridor. I felt very sorry for the nurses who were rushed off their feet!!! I felt then that we need more nurses and that was well before Covid.