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Hi, I have been diagnosed with VIN 3 of the vulva, and my course of treatment is a wide local excision, which includes a margin of healthy tissue, which includes my clitoris, I really want that not to be removed. I called the hospital to speak about...
Hi there, this is my first post, trying to reach out for support as I've had vulva cancer twice. Problem started in 2010 got high grade 3 and soon awaiting to have my clitorous removed which I'm so scared of having done. Anyone out there had this surgery...
Hello everyone, I wanted to pop on here to see if anyone had experienced anything similar. My mind’s a mess and has been for a while now (which I’m sure many here will understand) brief history: 2021 - 1st HR HPV+ smear (with ectropian) ...
Hi everyone, Can i ask you how on earth did you all know something was wrong for you to end up being diagnosed with vulva cancer. I read your stories about your treatments etc etc but what made you get checked out etc. I went to see my g.p. who sent...
Hi! I am new here and I recently had a biopsy of a lesion in the perineum and had the result within 1 week. I was having a smear test due to 3 years HPV and my GP asked if they could do a biopsy at the same time. The result came back as VIN3, the nurse...
Hi I'm new here. Was diagnosed with vulva cancer 3 years ago. I am now worried it has come back again. Seeing the gynaecologist on the 21st. My question is -: has anyone noticed that the opening to their urethra is showing white? Also I have concens...
Hey has anyone feared their diagnosis was incorrect and had a 2nd opinion to double check please? Mountains of my evidences professionals saying same all along many many symptoms coming along all pointing to vulvar melanoma. Plus my oncologist said my...
Hello all. So mines a complicated one. Im going to make it short and sweet in April 24 I got a random phone call to say I had an app at the hospital the following week. I went to this appointment none the wiser to what it was actually for. Anyways turns...
Hi All I'm new to forums in general :) 3 weeks after diagnosis it's quite a large area near my urine hole which they are concerned about. No treatment plan yet but will probably be radiotherapy. Totally out of the blue diagnosis as had UTIs and thrush...
Hi. I am currently devastated and in limbo awaiting biopsies. I have been through the five year battle with Lung Cancer. Treated for skin cancer on my face and now, after seeing a gynae oncologist I have been diagnosed with severe Lichen Sclerosis and...
