Vulva cancer

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Hi there, this is my first post, trying to reach out for support as I've had vulva cancer twice. Problem started in 2010 got high grade 3 and soon awaiting to have my clitorous removed which I'm so scared of having done.

Anyone out there had this surgery done?

Please share your experience with me

Presley x

  • Hello Presley, sorry you are going through this.

    I had a radical vulvectomy last year, including the removal of my clitoris.  If I can help you in any way, then I will do.   I made a good recovery, although the whole of my vulva area was tender for longer than I thought, as it was a wide excision.  Fortunately all the cancer was removed and the surrounding areas were clear.  No further treatment was required, although I have to have regular check ups for 5 years.

    Please ask anything you need to.

    Kind thoughts

    Elaine