VIN3

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New here. Just awaiting WLE next month. Totally terrified. At work now, but going to catch up with all the posts on this "rare" condition later.

Seems so little available support or understanding out there,  aside from others with condition.

Happy to chat with anyone,  feeling very isolated just now.

  • Honestly - I feel fine - and I may be an idiot, but I am not overly worried about any of it.  it’s just like London buses, that’s all - everything at once. ! I play the flute - that is my therapy if I ever need it.  I am doing odd jobs in the garden while the weather is nice - all the best xx

  • Hello Sian, I had my vulvectomy almost two years ago.  It took me over 6 months to pluck up the courage to have a look.  I felt shocked to see it.  Yes the mutilation made me feel upset and I didn’t feel like a woman.  I have looked again and have just about come to terms with how I look.  Just relieved now that all the cancer was removed.  So far I am still clear but have another check up at the end of June.  I still do worry that it will return but I suppose that is normal.

    Take care and please ask anything you want.

  • Oh my goodness I’ve already gone back yesterday to cleaning Air BNBs my doctor seemed fine with it and I have no pain at all , I am being mindful I do have stitches so taking it slower . I just hope & pray this is over for me I just wish I could get this virus gone & it’s just tore my body up yet others it doesn’t bother at all Shrug tone1‍♀️

  • Braver girl than I. A lot depends on exactly were your surgery was I think. Being on the fb forums I learnt a lot. Just be careful x

  • I agree, be careful.  I was but even then I managed to tear one of my stitches just with walking.